Healthy people after bedrest are not comparable to people with ME. We are not deconditioned and even people in the community who are healthy but...
Genetic mitochondrial disease will be different from acquired disease. A genetic defect will affect all cells so the damage will be severe but...
In the days of ME a disproportionate number of sufferers were teachers, health care workers, and women with young children. It was thought that...
Let's face it, sleep is a dynamic process not rest so it is not wonder our ME bodies can't do it properly. Maybe in the early days the body is...
From memory, sleep is initiated by a complex interaction between 3 systems. There is one involving melatonin which is set by sunlight in the...
This is a very important subject. Mental health treatment is denied to people with ME because either we dare not go to a practitioner or, if we...
The 041 adenovirus they have found in some of the children usually causes gastroenteritis. If children are meeting it later in life because of...
It is a meaningless sound bite that looks profound at first sight then a second look tells you how stupid it is. There is nothing bizarre about...
I find it difficult to understand these abstracts so I may be missing something. The children were already diagnosed as having functional seizures...
I worked out ways to make cooking easy when I was moderate with kids at home and cooking for 8 of us at times! I have used a series of halogen...
I hadn't considered it but my temperature control is very bad. Right from when I was first ill if I am too hot I have great difficulty cooling...
My OT became bad during very hot weather. I thought it had become permanent but it got better during the winter. The next summer I took steps to...
I enjoyed the blog it is such an important subject. Creative pursuits have helped me cope with ME. It gives me confidence when I go back to an old...
I don't understand the implications of this but my symptoms are strongly neurological so it interests me very much.
I tried to find the Trier scale but only managed to see a short sample of the questions but a lot of them were of the sort we are used to where...
Andy, you do well to bring these articles to our attention, I just can't bring myself to press like. What sort of prognosis can there be apart...
Exactly. If their results are accurate (Who would have thought science would have come to that?) they have shown that functional gastric disorders...
I kepp repeating myself but then so do the researchers! OT and sensory modulation are valid treatments without invoking any psychological or...
Physiotherapy is good for children who have neurological disorders. The outcome for cerebral palsy children is much better fi they get regular...
I see what you are saying but I think you give them too much credit. We have to guess what they really mean so we always have to wonder if they...
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