I am on this forum a lot (!) but I would not like to be asked what I want from a service without discussing it here. I need other people to point...
So that "may" - a word that means there is no evidence, just an idea - is enough to tell patients they have a mental illness. You would think a...
But we know what causes interstitial cystitis, it is a functional neurological disorder, commonly known as hysteria. What a waste of resources to...
MS has fatigue, but it does not have anything like the PEM we get. If EBV does have an involvement with ME for some people this sort of thing...
That is outrageous. It calls your professional competence into question and needs to be addressed. I would think you had a legal case against...
Yes and it is strange that we antiscience patients are wanting research into mitochondrial function while the royal collages are defending the...
This highlights the problem with CPET testing - the risk of permanent deterioration. The experiments which would answer many questions would be...
Problems with dorsal root ganglia have been found at autopsy in people with ME.
Interesting. I love genetics, it is like quantum theory, they show that science is not nearly done with explaining the universe.
In genetic mitochondrial disease all mitochondria will be affected but in ME it is most likely that the mitochondrial dysfunction, whether it is...
Bad research and twisting of all results to be positive is letting them claim this high success rate. It would take a hard hearted paediatric...
The other side of this is that there is always the media ready to pounce and a politician ready to be scandalised that their opponent has let...
It is like talking to a rock.
You have described it so well Jem
Such things may affect metabolites but people are sent for single CPET tests every day and the results are taken as evidence of heart disease or...
This is not anything worth worrying about. People with ME want a test that will give proof that something is going on to show they are not imaging...
OK I may have got this wrong but I think they are saying that they found a correlation between adverse experiences and anxiety/depression. They...
When Workwell did the first studies they commented that the controls complained on the second day but the ME patients "would have walked over...
I liked the way it was written. Everything was described the way it actually was from our point of view (the truth!) I am used to writings about...
ME is not "all-consuming fatigue" it is a problem with energy production and an unusual response to exertion. That may give someone all consuming...
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