I have no thoughts on the direct discussion here, but if the low levels of activity we are forced into is causing some of our symptoms then surely...
Yes, as I said then, if radiation was a common cause then there would be a large cluster in Aberdeen as the granite used in so many buildings is...
ME, as opposed to a time limited post viral, is permanent and it is vital for newly diagnosed patients to know that for the simple reason that it...
The deconditioning model was needed because they said that ME was now to be called CFS and treated with exercise. But ME was a disease where...
feeling debilitating fatigue is awful no matter the cause and if something helps that is great. but why should that mean that ME needs treated the...
The original symptom in ME was stated as an abnormal response to exercise. PEM as a concept was introduced by the CDC definitions of CFS which...
The New Scientist had a feature article on this. One of the mysteries was why intellectual people deteriorated so quickly when they developed...
They may not get away with things in this patient population that they do with ME. If it doesn't work patients will just drop it as they have a...
I was originally diagnosed with migraine and this is what they meant. It would automatically fit into the definition of FND as they have a very...
So I developed diabetes. I was tested seen by a diabetes nurse who considered my diet (very good) exercise (impossible), alcohol consumption...
I had bad hypoglycaemia when I did more. It was very frustrating to feel well enough to go shopping then collapse because of a sudden hypo. I was...
Roma Moss Morris is very involved with MS and it is the "evidence" of great success treating Chronic Fatigue Syndrome that is being used to sell...
I don't understand this. If they included children who had symptoms again after a week but the ONS did not include them again this study should...
I don't have a reference, sorry, but a few days ago I read a news article about one of the UK train companies who did a comprehensive survey of...
There is also the fact that ME is a disease of energy production. The Workwell research has shown that at least a subset of patients with ME have...
Most people get better at these tests as they get the hang of it. People with ME get tired so their score drops but they never repeat the test...
It is very depressing. What gets me is that I was diagnosed in 1984 just at the time when scientific interest was being taken into ME as a...
There was something last week that said that NICE was forced to take another look at the 2007 guidelines because of pressure from the ME...
I had an operation in about 94/95 and I was told that because of my immobility I would be given heparin for at least a week after the operation....
With modern day computers you'd think it would not be difficult to make a graph of actual data points. Pooled data can give a shorthand answer but...
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