I bailed at the 2 hour mark, which was already way past my limit. An awful lot of effort was made by very ill people to get maybe a millimeter of...
I did receive a zoom link today.
I received my magazine today and have emailed the relevant address asking for a link to the AGM. Not sure if I will manage it healthwise even if...
Its been interesting to observe my normally very healthy husband as he recovers from Covid. He's been reporting "pooping out" in energy following...
The pattern is more complicated for me and it's about degree and pattern of change not absolutes or high being good low being bad. I have noticed...
What I don't understand is that from the wording of the article alone he must have expected there to be lots of complaints so why would he want to...
Maybe I've been unlucky but, excluding my actual private ME specialist, I can't actually think of any Dr I've met who *doesn't* think it...
Thanks. We're attempting the complaint process escalation but not hopeful as ICS is pretty "anti ME" as I have heard, this even though the Dr has...
I'm on this since about 9 months. Zero side effects I can notice and I am top end of severe and med sensitive. It works a treat. Getting off to...
Didn't Florence Nightingale famously get ME/CFS (as far as we can tell from historic symptom descriptions and past diagnostic labels) and other...
I'm homebound as severely affected and most of the answers don't apply. I don't mask for breathlessness reasons myself. I have ask my PA to mask...
I guess it depends on show bad the old style service is. I was gaslight terrible by the former Norfolk and Suffolk service and they didn't even...
Answer to my questions received on 25th Sept 24 Dear Ms Stuart Clarke Further to your question for our board meeting today, I am emailing to...
ICB Board Question So I started investigating the Norfolk ICB board online and discovered the public have the right to ask questions at their...
Sadly I'm a lone voice here and it all feels very fruitless. What little hope there is rests in your amazing work over the border.
Moved post Well. Re the 3 intra Norfolk ccgs. I have the misfortune to live right on the border of 2 of the 3 Norfolk services (my home in one...
Since 2021 Norfolk and Waveney ICB split with Suffolk which is now commissioning a new NICE compliant service with NE Essex as SNEE. This post is...
I really hope your trailblaizer project works out. N&W claim to be watching.
@admin. Given that Norfolk and Waveny have split from Suffolk and NE Essex and the former aren't cooperating with a nice compliant...
Yes it's a great shame there is not more transparency as there is in other countries. It would a be powerful exercise. I do know of at least one...
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