I know there are challenges atm but I guess it depends on the time period you look at. It's down from a pre pandemic peak when the centres of...
I've never heard of it but it 100% applies to me. With one very notable exception being contracting viral meningitis during surgery - which...
Great work @Initial Conditions I agree it would be valuable to map this against one or a group of useful comparators. Then it would be great to...
How is Long Covid being coded on Snowmed in the UK currently? Has it been placed under post viral conditions like ME or elsewhere? I heard the...
What's EDM? I live in Norfolk and Waveney. Quadram is just research. We have a very crappy community "specialist service" here with 4 group...
I know that this is unsubstantiated but I find this a very concerning move by the BPS advocates. At the moment PEM is what protects patients from...
I think the term ME has evolved to mean something other than the original use and that's OK. I suspect the majority doctors are not aufait with...
Anecdotally, I made butyrate friendly dietary changes and took a butyrate producing probiotic strain using a (unproven of course) stool sample...
I agree the test needs sufficient validity but think we are where we are and because of the BPS stigmatisation a biomarker is critical for large...
I was sick as a dog on it, it caused hideous intolerable migraines when I am not remotely prone to them. Never again. This is a very problematic...
Is FND genuinely a valid separate entity and comorbidity? I don't really understand the similarity and differences of FND to ME? Isn't this a...
I'm not sure about the best solution and it's a slightly different requirement (@ mod this may need moving) but a meta paper type exercise that...
Things that put me off. Not feeling I have good enough scientific understanding to contribute meaningfully Not feeling I have good enough...
This is so disturbing. There's such an obvious answer to the accusatory title and for that to be ignored. :banghead:
My ME actually progressed in severity due to contacting viral meningitis and spent a week in hospital with it. But nurses still kept opening the...
ME too, but I do find the term "fatigue" inaccurate and unhelpful as in practice (at least in my moderate and severe states) it's a fundamental...
Looks like they're recruiting at point of surgery. I I like the fact it's using wearables. It will be interesting to see if data on ME as a...
That weird. I have a copy of this that states it's $15.5billion. I wonder which one is the latest version...
Yes I think that would be a very interesting extension. You would expect the ME specific indicators in that Cure ME cohort, which includes severe...
I thought this press release including "Up to 18 new Commercial Research Delivery Centres (CRDCs) will be established across the 4 nations to...
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