I suspect the overlap is much higher than reported figures. Typically Endometriosis only gets diagnosed fairly late, it's predominantly still...
The MEA mentioned that the Isle of Man has a combined service and is asking for patient views on social media. If it was adequately staffed for...
Yes, I wouldn't disagree. I meant my question in the context of wondering whether she is likely to somehow just think this an innocent isolated...
Hi, I'm severe (top end) so not following this blow by blow but have read the mainstream media coverage (including the two BPS articles ironically...
I did this after running out and was fine. I had worse symptoms but didn't full crash. It was uncomfortable and not very pleasant but manageable...
The ME Association Newsletter Text. This hardly feels like a top priority JLA PSP-aligned project though, and is still diverting research...
I was expecting problems as my GP hasn't been helpful but no, it went through very smoothly and quickly with no queries or push back. If you...
I wrote a letter to my GP and got mine successfully upgraded from the general code Xa01F to XaPoo to reflect my severe status. It's now on my...
He's probably there to help with the privatisation I just saw this and felt sick too. And the ' long covid (and ME) is fnd' article he tweeted...
I have been married twice each time over a decade with partners and zero contagion even with "marital relations". If there was actually contagion...
I'm seeing increasing research into the genetics of ME like the recent precision analytics paper. So a general question. Has anyone sequenced...
Thanks for explaining that. I was very young in the eighties so wasn't even aware of the condition by either name. It's funny how words take on a...
Interesting you say that. I'm sure you'll know much better than me about any distinctions between the two made within the medical profession. I'd...
Hi and many thanks for explaining. Interesting WHO see it as fitting under Rheumatology despite classing it as a neurological condition. I had an...
I found a bit of info on the MEA site that appeared to suggest it could now also be coded as ME/CFS or PVFS in UK, and that you could get your...
I got my patient summary today and rather depressingly it states I have "chronic fatigue syndrome" (xa01f). Which the more I learn about the...
One other dimension is that back then little was known about longitudinal disease evolution. My symptoms and how they behave are vastly different...
I had a parasym and was told to leave it on 200 and 20 and only adjust the intensity level and time as variables. I got up to about an hour but...
Merged thread Making a case for LDN (Low Dose Naltrexone) So I've finally seen a reputable consultant and he wants to prescribe A b12, B LDN C...
Thanks Jem, I didn't know about the book. Many Thanks. Funnily enough that ivig post popped up on my Facebook feed this morning. I was...
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