I very much agree with this. I was working in my early ME, getting symptoms, feeling ill, something very wrong. I tried to carry on and 6 years...
This is a good example of how cognitively overwhelmed I get. There is too much to say, describe and then I have all the stages of ME in my mind as...
I agree with this. PEM is so much more discernable in the severer levels. Patients with early ME should be given symptom lists like, unusual...
Some quick thoughts having only glanced. For me, delayed PEM was so much more transparent when in my severer levels because I was experiencing it...
I've still got to post on this thread. It could take another week yet. I'll delete this post when I am able to post my experience.
I have to guard myself and recognize when things are hitting too hard. Take a break. I avoid threads that are too much. I am better at doing this...
I don't understand all this but at my very severe onset I had one abnormal IgM. A week or so later it was normal.
I did the 24 hour urine cortisol test in my first year of very severe ME. I remember there being very specific instructions which I followed. They...
I've watched videos on YouTube where passengers were not wearing a seat belt at the time of accident and it is horrendous what happens to a body....
I think you are describing the 'no choice but to lie down'?
Same here Evergreen. The OI was my first symptom as well and also tracks alongside my ME in severity with the odd worsening bouts.
If you were to stand for a minute or two in the shower would you have to spread your feet wide apart for balance and for the feeling/need to try...
My blood pressure was low in my severer years Sasha. Maybe that was contributing as well.
Yes, I know what you mean here. I've had that too in my severer years. It's not just a problem with standing, there is sitting, even lying down...
The need to lie down comes from what @Utsikt mentioned as number 3." Feeling of being under many G". The body starts to weigh very heavy and pulls...
Yes, this POTS describes me. The lightheadedness and dizziness symptom I would describe as a feeling of a head heavy of water and I have to turn...
I have to be very careful how I move my head. I think I accidently gave myself a tilt table test in my first year of very severe. I moved my head...
I just had a quick flick read of a couple of posts at the beginning of this thread about 'profound ME' where the very severe cannot get out of bed...
I can only glance over this thread at the moment as I am trying not to provoke worsening symptoms. Feeling better today though. For me, I think...
There are so many threads I want to read at the moment and I'm not sure where to put this. I have done more reading and scrolling this last week...
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