I just edited my last post on page 4 of this thread. I had used ' real trouble with the brain' which I should not have used. I have deleted it...
Yes, in my severer years I called these 'good hours' breathers. I would gather all the inner strength, mental grit that I could to help get...
@Trish I have been thinking about fatiguability for a few days and questioning why I have a resistance to that description. I need to sit with it...
This is another good example of level variation that I have experienced.
This is important for those of us who have had ME a very long time. Over a 30 year period I went from mild to very severe then severe to moderate...
Yes. Very much so. I like the way you were able to entwine that whole dynamic.
I think you could be right to separate this. I need to think more on it and remember my experiences. These sensory challenges make a ME person...
Yes, same here @Peter Trewhitt and @Midnattsol My experience as well. I just hope we don't over-complicate with a lot of terms describing what is...
Thanks @Trish I'm having trouble with understanding 'contingent' as in symptom contingent. It may be that I am thicker than most people? I have...
Can we have a glossary of words/terms for ME that the ME community prefers? I sometimes use terms like 'resting routine', 'managing the ME', and...
In my severer years I experienced the tremors (felt like adrenaline) when I had done too much. It was a non visible tremor that was unpleasant. I...
I like ME/CFS Research Skeptic. Edit: I see @wingate mentioned this on page 2 of this thread. I think this is a good name and is more explanatory.
@ME/CFS Skeptic when I first saw your name on the forum I remember being curious to know more about you and your thinking on ME and why you had...
I'd just to record some things that I did differently when I found out I had Covid. The first week of Covid I thought my sinuses were playing up,...
The last couple of days I have noticed that my mental clarity is returning back to the ME brain. During Covid I was able to think more easily....
I tested negative today for Covid. I'm still stuffy in the nose with a wee bit of drainage from the sinuses, but that feels like it is trying to...
What is happening here in connection with ME and a virus where the ME draining of sinuses is from having really overdone and the draining of the...
How far along are you with the Covid @poetinsf ? I can't quite work out whether I am going to develop a chest infection or just have this...
I think I am at the stage now where I could start having breathing problems. I can feel that my chest has some inflammation. I don't know whether...
Thanks Mij, it's interesting to see your timescales. I just called the doctors surgery and I think I will just wait until my telephone consult...
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