I don't think I can answer this question as well as I would like. The reason is that there could be a factor that is important that may have...
The first 10 years of my ME I had a pillow under the mattress which helped elevate my head slightly. I can't remember why I did that. I was...
Before ME I never experienced any post viral anything. So ME was a great shock to me.
I've always had a great need to lie down all the years of my ME. For me it is like a medication I do not want to take but have no choice because...
Interesting. I did notice I was getting flashes of heat at my throat. I forgot to mention that to my doctor. I guess I will learn more as time...
I've had a sore throat off and on for the last year which seemed different to other sore throats that I have had in the past. So I made an...
Last year I had to take myself to the A&E. I arrived about 8am and was sent to an assessment area beside the main A&E dept. What a day it was. I...
It's irritating that I have to add to this but just in case the BPS are reading. I am not recovered nor have I made a permanent recovery from...
The only time I remember feeling like I had no strength in my muscles were in the very severe years. It's possible that I am not recognizing a...
@boolybooly Same here. Before ME I used to go to the gym to tone up my arm and leg muscles before summer. It would only take about 3 weeks to feel...
@Robert 1973 My very severe ME onset felt like a speeding car crash, the car stopped but the engine would not quit. PEM always induces insomnia in...
I'm not quite sure what the intricacies of this thread is about. I will try to read through more carefully eventually. In my severest years it...
Masks have served me excellently. Along with sanitizing my hands. I live on my own and only allow family without sniffles in the house. Family...
I can't choose one. There were many that were as agonizingly disabling as each other in my severer years.
I haven't seen the film. I will try to make a point of watching it eventually. I remember at the time not connecting to Jen's ME. I'm not saying...
Definitely feels like the 'clear up' has major problems. I do everything possible to stay away from very severe ME again. Thanks for your...
Some weeks ago I was curious to know the highest cause of death in each state of the US. I found the 2021 statistics. 1st and 2nd were mainly...
For me, OI and ME/PEM have always run along side each other at the same level. My ME is now a managed moderate and so is the OI. I remember my...
I had my 6th Pfizer vaccine on Saturday, 2 days ago. I was told that it was the same vaccine I had for my 5th jab. I had a slight headache for 2...
I wonder what affect this would have on our kidney function. I came across a couple of old blood tests from 2012 this morning that had low eGFR. I...
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