I've just emailed them and put my name forward.
It's been nearly 9 months since my last Covid booster. They are rolling out the next Covid vaccine the beginning of April here in NZ. I have an op...
I'm still wearing a mask when I go out. I do everything possible not to catch Covid. Whenever I touch anything when out I sanitize my hands, even...
I think the gut and other areas of microbiome problems have been caused by an immune reaction and it has seized the microbiota changing it...
I think from a post I read of JE is that it is something the patient cannot manage meaning it is involved in the PEM mechanism? I could have...
Interesting, I am the opposite in PEM, loose bowels. Same mechanism but different expression? Something I noticed in my very severe and severe...
Just to elaborate a bit more on this regarding severity. The stages of severity in the shower with gait from milder end to severe. 1. Stand...
I've had a lot of change in gait with ME. In the shower my legs will automaticlly spread wider apart for balance in response to how much...
I remember at very severe ME I was so sick I couldn't even bear to hear the word exercise. I was getting PEM from the very simplest of tasks. I...
@SunnyK I've had 3 generals in the last 3 years and I have another op coming up in March for a hysterectomy. None of the operations affected my ME...
This morning I went to get my 5th dose of Covid vaccine and was told at the pharmacy that there was no 5th dose. So it looks like from now on I am...
I did manage to get a prescription for LDN about 7 years ago but I did not get it filled. I was concerned about severe side effects and just not...
I haven't caught Covid yet. I double mask when out and sit outside if I have a coffee. Always take sanitizer with me. I'm due for my 5th vaccine...
I had to see my GP a couple of weeks ago and mentioned that I may be at greater risk if I catch Covid due to lung problems. She said I only meet 2...
Looking through my old GP notes from the 80s I have finally found the vaginal pessary that caused an immediate reaction and permanent change in...
@Hubris I wonder what your level of ME is because the physical PEM I was getting at very severe and higher end of severe were unbearable, it was a...
I haven't seen summer colds in past years as bad as what I am seeing at the moment. Like @Sean in Australia we are also going through a Covid wave...
I'm hanging out for my next Covid vaccine (5th dose) which will be around January 5th. I don't feel safe at all when out at the moment here in...
@oldtimer Very memorable aren't they. lol. I spent quite a bit of time lying there trying to work out what all the noise was. I even wondered if...
I had to stay one night in hospital Friday night. I tried to wear a mask while sleeping but I couldn't bear it while trying to go off to sleep so...
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