I'm happy to identify as disabled although I usually add 'and chronically ill' because it gives more info - lots of disabled people aren't ill....
Ooo, I'm in the middle of listening to the audio book of this! :):):)
I love this blog.
It's heartbreaking. From what I've picked up, these healers became popular because they seemed to listen, care and understand when others didn't....
I find the Better spray really good too. I took expensive tablets and didn't make a difference but with the spray I would say that it *might* stop...
A while ago a close relative of mine was suffering from severe prolonged leg and hip pain. She kept saying, 'it feels like it's inside my bones'....
I like your list, I think it would give an accurate insight into my level of functioning. :thumbup:
I asked Dr Bansal (when he was still at St Helier's) about MCAS and he said, 'we don't know if that actually exists'. Given my allergy-like...
I couldn't agree with this and with the general sentiment expressed on this thread more. I find it very worrying and I really hope that...
I definitely feel it in my neck when I've overdone it. I don't think I'd describe it as pulsating but it feels inflammed and a very deep, strong...
Thanks, I'll give this a read. I like the metaphor of the broken water wheel.
Signed. I couldn't get to the FT article, but read this one in the guardian:...
Thanks for reporting it, I will do the same. I'm unsure whether it will have any affect though. I think the main problems with this video are:...
Thanks. Yes, I think it's interesting anecdotal evidence of how neurologists have viewed ME patients rather than being particularly damning of SW...
Wow, shocking. I have not heard this. Where did he say this? Is it on record anywhere?
I have used cromolyn sodium as an inhaler for ME/CFS symptoms. This was before I knew it was ME/CFS (I had gradual onset). The GP prescribed it...
oooo, fascinating.
Excellent article. Does anyone know 'long-covid' is affecting both genders at the same rates? From what I've seen (very little) it seems to be...
I agree. I see positives but I also have concerns. Viruses can take time to get over. Post-viral fatigue is horrible but it often gets better...
I'm confused about the difference between the two. How do you distinguish between energy problems/fatigue? Surely what I call 'fatigue' might be...
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