I just read this thread on twitter about the chrysalis effect: [MEDIA] There's a tweet that I think is very accurate that says: "Elaine Wilkinson...
A bit of Linkedin networking from Chrysalis Effect founder Elaine Wilkins:...
I have a couple of friends who are working as lecturers and finding academia very stressful at the moment but that might be UK specific (lack of...
Do not go into teaching is my advice. (Based on experience!) Sad because it's a brilliant career and I really loved it. But it's not worth your...
I think at this point it would make sense for DwME to do an evaluation of existing communications to see what's working and what's not. Clearly...
I've given the statement a better read through. I agree with Trish, some good ideas but it needs to be edited for clarity. Some of the sentences...
I really don't think glass ceiling is the right phrase here. I've given it just a quick skim (very quick!) and I think he's trying to say that...
I'd be interested to compare the pwME who had a relative with autoimmd with those who had a relative with hematologic malignancies and those who...
I have a first degree and second degree relative with hematologic malignancy. I know others with ME who have a first degree relative with...
Personally, I would only apply to be a PAG member if it were possible to remain anonymous. There are plenty of reasons why people may want to...
Are there any conflicts of interest?
Fascinating!
MS and EBV covered in an article on the BBC today: Is a virus we all have causing multiple sclerosis? https://www.bbc.co.uk/news/health-61042598...
Pollen and grass allergy symptoms often feel very similar to PEM to me, it's very difficult for me to distinguish between the two.
Who knows if anything will come of this particular treatment, it seems to be early stages as Jonathan says. But it seems like there is beginning...
@Andy do you know if the latest webinar will be up on youtube or the blog soon? I want to share it with a non facebook user!
I second this! The DecodeME webinars and communication in general have been excellent and it's so reassuring to feel that the study is being done...
I came here to post this! Fascinating stuff (with my surface level of understanding!) Also makes me think that there's bound to be an EBV vaccine...
Obviously the content and attitude expressed are completely appalling but I can't believe how bad the writing is!! The third paragraph is so...
I don't understand this, if it works for Long Covid, it will be in the drug company's interest to fund studies into whether it works for ME/CFS....
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