I agree Andy, and I am seeking no favours, however, they do make exceptions for some..... and their 'criteria' is totally at odds with the spirit...
Not entirely true.... as there are patients carers and local groups allowed on it! Selectively though..... Our plan with ME written up and case...
I approached BACME as a NICE Stakeholder for LocalME, and as someone involved with the DHSC Living with ME discussion. I asked to join BACME as I...
[MEDIA] ME Association - POST-COVID FATIGUE/ME - BBC WEST ... [ATTACH] Facebook https://m.facebook.com › meassociation › photos POST-COVID...
https://uk.linkedin.com/in/matthew-hill-53196115 matthew hill HEALTH CORRESPONDENT WEST at BBC News United Kingdom HEALTH CORRESPONDENT WES...
I think you mean Matthew Hills .....? H2 has done 2 docs on ME. also BBC Panorama guru editor Maria David who called me 2017 pre NICE Review...?
Moved post FYI at S4ME....... IN THIS MONTH’S NEWSLETTER...NHS Health at Work Network News Update 'I hope you have all been able to take...
The form is no longer available. Does anyone have a copy? Trish?
Helen Stokes-Lampard previously told the Independent regarding the DWP wanting to access patient’s medical records: If Helen complains, she of...
There is another issue here. Consideration for the severely affected. This morning I did a literature search on PROMS....
Fair point and interesting observation.
Sorry I will write some thing up to explain later.
FOI questions to be asked ? 10 points to argue with your local ICS/ Foundation Trust service provider? Revisiting my 'NICE files' and our...
Clear concise timely analysis. Bet you have received no fee for this work Trish...!? Wonder what funds were spent by AfME in securing this third...
I total agree with all your points. Things must move on. We are hoping to buck the above trend though here on Suffolk.. ( Well the Suffolk minus...
In answer to your question Andy, it might if CCGs and GPs had 'adopted', transitioned to recording under Smowmed codes for locally diagnosed...
Data- lies, Dawn lies & statistics 're above. 'Care... ? 'Care and Support Plans'. There needs a lot of unpicking within all this AfME/DHSC GRIP...
I think I may be able to shed a little light on NHS FT's thinking here, 'currently receiving care'.. but not necessarily for ME! ME patients...
It did a very good job using the report in the online Times version to raise awareness and highlight the plight of all ME patients especially...
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