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  1. Suffolkres
    Post

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Moved from the NICE guideline thread Absolutely. I note that today our Improvement manager is taking issues on board with ECCH the contracted...
    Post by: Suffolkres, Nov 3, 2021 in forum: UK clinics and doctors
  2. Suffolkres
    Post

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Moved from this thread: NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion...
    Post by: Suffolkres, Nov 3, 2021 in forum: UK clinics and doctors
  3. Suffolkres
    Post

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Post by: Suffolkres, Nov 1, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  4. Suffolkres
    Post

    NHS England web pages on ME/CFS

    Just reading about one of the attendees from NHS England...... Celia is also the interim National Director of Patient Safety at NHS Improvement....
    Post by: Suffolkres, Oct 31, 2021 in forum: UK clinics and doctors
  5. Suffolkres
    Post

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    [ATTACH]
    Post by: Suffolkres, Oct 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  6. Suffolkres
    Post

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    So am I.,,, or correctly I was, until life and age got in the way, I used to be called 'carrot top' as a child!
    Post by: Suffolkres, Oct 30, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  7. Suffolkres
    Post

    NHS England web pages on ME/CFS

    Moved post Well NHS have not hung about,,,, https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/ Page last reviewed: 29 October 2021 Next...
    Post by: Suffolkres, Oct 30, 2021 in forum: UK clinics and doctors
  8. Suffolkres
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Arnie, may I copy this to Georgina please (anon if required)? She has a thread on her FaceBook page and needs lots of support atm.? She is a very...
    Post by: Suffolkres, Oct 30, 2021 in forum: Long Covid news
  9. Suffolkres
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    =AZVcsHqN394bcDZ0dn7vvOPVOgmt9NLbZChX1F7JDREoeVsIjL35Fpr_HezfKcWZxf1eavSJ0c5Jp-BDhQHlS3xi64AyKg4pgay8x14jCdfRm4pwOufVmMv3yh0KhsNqI5WhJ2C04jFlEhwZ3c...
    Post by: Suffolkres, Oct 29, 2021 in forum: Long Covid news
  10. Suffolkres
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Some positive and good news from Suffolk. Our wonderful Commissioning Team have programmed ME Service development for next Tuesday's Meeting of...
    Post by: Suffolkres, Oct 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  11. Suffolkres
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    We stakeholders have a confidential copy of the Press release
    Post by: Suffolkres, Oct 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  12. Suffolkres
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    :nailbiting::nailbiting::nailbiting::nailbiting::nailbiting: I am now a genuine conspiracy theorist! Thanks for the explanation. I will go back to...
    Post by: Suffolkres, Oct 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  13. Suffolkres
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I asked about Roundtable
    Post by: Suffolkres, Oct 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  14. Suffolkres
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Victor Meldrew moment....... wtf...? Just received.. Dear Colleague, There is now an updated version of the guideline in the folder. All log in...
    Post by: Suffolkres, Oct 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  15. Suffolkres
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Just rung up and asked about minutes of Rupert Franklin who says they will be published with Guideline tomorrow!
    Post by: Suffolkres, Oct 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  16. Suffolkres
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Just received embargoed release........
    Post by: Suffolkres, Oct 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  17. Suffolkres
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Yes.. but
    Post by: Suffolkres, Oct 27, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  18. Suffolkres
    Post

    UK House of Lords/ House of Commons Questions

    Concerned as this appears to be released in September 2021... by someone within NHS England....Simon Collin...
    Post by: Suffolkres, Oct 27, 2021 in forum: General ME/CFS news
  19. Suffolkres
    Post

    UK House of Lords/ House of Commons Questions

    The impact of CFS/ME on employment and productivity in the UK: a cross-sectional study based on the CFS/ME National Outcomes Database September...
    Post by: Suffolkres, Oct 27, 2021 in forum: General ME/CFS news
  20. Suffolkres
    Post

    UK House of Lords/ House of Commons Questions

    https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-11-217 The impact of CFS/ME on employment and productivity in the UK: a...
    Post by: Suffolkres, Oct 27, 2021 in forum: General ME/CFS news
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