Prospective open-label trial with rituximab in patients with chronic inflammatory demyelinating polyradiculoneuropathy not responding to...
I could not agree more with all the sentiment here. Our Eastern region was unusual in that it had a well respected regional but 'covert ' under...
Yes, Jo. We have repeatedly refused to sign up to a therapy based service, (since 2003!!!) Rejecting a therapy led / community based service....
This one..? https://www.letstalksnee.co.uk/me-cfs-long-covid-pathway/surveys/cfs-me-long-covid-patient-and-carer-focus-groups-sign-up-form Our...
https://suffolkandnortheastessex.icb.nhs.uk/news/give-your-views-on-plans-for-new-combined-post-viral-condition-services/
Grateful for all your interest and your comments.
Probably as they issued us a broken link first off...... I will check via their website
We created the above over 2 decades. We were unequivocal and independant. Had good support from Overview and Scrutiny/ MPs/ APPG etc But our...
That has always been our fear too. So HOW to ensure that doesn't come to pass is the critical question.... How to effectively hold provider to...
Feedback so far suggests the natives and responders to date are very displeased with current provision. .... Well that's no surprise!
We said simply, The work that B and I do is based on feedback from hundreds of service users over the years, mainly from local support groups,...
https://www.letstalksnee.co.uk/me-cfs-long-covid-pathway/surveys/transformation-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-and-lo...
Coproduction Lead ICB I hope you are well and thank you for your patience. The engagement opportunity is now ready to share with patients and...
I hope you are well and thank you for your patience. The engagement opportunity is now ready to share with patients and family carers for their...
FOCUS Groups Opportunity 'Thank you, In regard to patient representation, while we do not have a designated patient representative, each focus...
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