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  1. boolybooly
    Post

    Mind, body and ME

    ... and zen !
    Post by: boolybooly, Mar 2, 2020 in forum: Neurological/cognitive/vision
  2. boolybooly
    Post

    Patients with ME/CFS and chronic pain report similar level of sickness behavior as individuals injected with bacterial endotoxin... 2019, Jonsjö et al

    I think proper palliative care for PWME should acknowledge the emotional aspects of ME. I dont think denial is viable as a long term strategy....
    Post by: boolybooly, Mar 2, 2020 in forum: ME/CFS research
  3. boolybooly
    Post

    Patients with ME/CFS and chronic pain report similar level of sickness behavior as individuals injected with bacterial endotoxin... 2019, Jonsjö et al

    I want to add that I think the sickness ME causes does result in behavioural changes which have emotional disposition at their root, aka sickness...
    Post by: boolybooly, Mar 2, 2020 in forum: ME/CFS research
  4. boolybooly
    Post

    CFS/ME is associated with pandemic influenza infection, but not with an adjuvanted pandemic influenza vaccine, 2015, Magnus, Hornig, Lipkin et al

    I wonder what the data on narcolepsy is in the same population, particularly in relation to ME. My thinking being that if narcolpesy is autoimmune...
    Post by: boolybooly, Feb 25, 2020 in forum: ME/CFS research
  5. boolybooly
    Post

    CFS/ME is associated with pandemic influenza infection, but not with an adjuvanted pandemic influenza vaccine, 2015, Magnus, Hornig, Lipkin et al

    Yes, interesting point, I dont have an axe to grind either way over adjuvants myself but notice it is becoming a hot topic again considering the...
    Post by: boolybooly, Feb 25, 2020 in forum: ME/CFS research
  6. boolybooly
    Post

    CFS/ME is associated with pandemic influenza infection, but not with an adjuvanted pandemic influenza vaccine, 2015, Magnus, Hornig, Lipkin et al

    If I understand correctly, according to the description of methods, this data has no controls to assess diagnostic biases. I think ME is...
    Post by: boolybooly, Feb 24, 2020 in forum: ME/CFS research
  7. boolybooly
    Post

    A potential antigenic mimicry between viral and human proteins linking (ME/CFS) with autoimmunity:The case of HPV immunization - Phelan Feb 2020

    I came across an example today of how limited computer modelling of sequence affinity is, therefore how incomplete a foundation it is for...
    Post by: boolybooly, Feb 23, 2020 in forum: ME/CFS research
  8. boolybooly
    Post

    Robert Naviaux' Lab - News - from 2019 onwards

    IMHO We need multiple labs trying to identify the blood factor which is why I backed the Prusty fundraiser and hope the OMF will do their own...
    Post by: boolybooly, Feb 20, 2020 in forum: ME/CFS research news
  9. boolybooly
    Post

    Leonard Jason research finds that many young people have ME/CFS (Simon M blog)

    This is great and deserves as much exposure as it can get. This study from Professor Leonard Jason et al is invaluable because through common...
    Post by: boolybooly, Feb 20, 2020 in forum: ME/CFS research news
  10. boolybooly
    Post

    Coronavirus: Advice from ME organisations

    TWiV (This Week in Virology), the same blog David Tuller writes for about ME, run by Vincent Racaniello, has been very informative about this...
    Post by: boolybooly, Feb 18, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  11. boolybooly
    Post

    A potential antigenic mimicry between viral and human proteins linking (ME/CFS) with autoimmunity:The case of HPV immunization - Phelan Feb 2020

    Can'o'worms. This paper is predicated on speculative computation based guesswork about the possibility that HPV vaccine proteins could mimic...
    Post by: boolybooly, Feb 15, 2020 in forum: ME/CFS research
  12. boolybooly
    Post

    ME/CFS as a hyper-regulated immune system driven by an interplay between regulatory T cells & chronic human herpesvirus infections (2019) Nacul et al.

    I am a bit slow on the uptake sometimes but I have just realised this paper has a reference to the 2015 systematic review of cytokine responses...
    Post by: boolybooly, Feb 10, 2020 in forum: ME/CFS research
  13. boolybooly
    Post

    Parasympathetic activity is reduced during slow-wave sleep, but not resting wakefulness, in patients with chronic fatigue syndrome, 2019, Fatt et al

    I just want to clarify my last is about the discussion we are having here and not a validation of the approach of these authors. Its obvious after...
    Post by: boolybooly, Jan 30, 2020 in forum: ME/CFS research
  14. boolybooly
    Post

    Parasympathetic activity is reduced during slow-wave sleep, but not resting wakefulness, in patients with chronic fatigue syndrome, 2019, Fatt et al

    My guess would be that hypervigilance could also be a behavioural adaptation to being ill, yes it could be to avoid apnea or hypothermia-like...
    Post by: boolybooly, Jan 27, 2020 in forum: ME/CFS research
  15. boolybooly
    Post

    Patients with ME/CFS and chronic pain report similar level of sickness behavior as individuals injected with bacterial endotoxin... 2019, Jonsjö et al

    I have slept on it and have further criticisms, which are my personal opinion. The first is the lack of empirical data, since the study relies on...
    Post by: boolybooly, Jan 13, 2020 in forum: ME/CFS research
  16. boolybooly
    Post

    Patients with ME/CFS and chronic pain report similar level of sickness behavior as individuals injected with bacterial endotoxin... 2019, Jonsjö et al

    I was willing to give them the benefit of the doubt except for the following passage as mentioned above, because they do not consider...
    Post by: boolybooly, Jan 12, 2020 in forum: ME/CFS research
  17. boolybooly
    Post

    Perturbation of effector and regulatory T cell subsets in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2019) Karhan, Unutmaz et al

    Bearing in mind this needs replication to be worthy of treating as fact, my preliminary comment would be the observed impairment of Th17 and MAIT...
    Post by: boolybooly, Jan 6, 2020 in forum: ME/CFS research
  18. boolybooly
    Post

    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    I agree its pretty anecdotal and subjective. I am prepared to believe different people respond differently. For some it seems to be much more...
    Post by: boolybooly, Dec 28, 2019 in forum: ME/CFS research
  19. boolybooly
    Post

    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    I am one of Dr Myhill's patients and I think it makes more sense if you remember she sees a lot of CFS of various causes including organophosphate...
    Post by: boolybooly, Dec 28, 2019 in forum: ME/CFS research
  20. boolybooly
    Post

    The Impact of a Structured Exercise Programme upon Cognitive Function in Chronic Fatigue Syndrome Patients, 2019, Zalewski, Morten, Newton et al

    I couldnt agree more.
    Post by: boolybooly, Dec 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
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