There are also double standards regarding patient feedback. With our local ME community service positive comments are taken as read, but for years...
I found it interesting in that it discusses the effect of the female reproductive system on ME. My orthostatic symptoms have worsened during...
Worth a read. Considers how patient feedback is viewed by health professionals and managers and cultural problems that PWME will likely recognise....
How low is the bar for harassment to go?...
Blog in the BMJ, LSHTM tweeted about it today. The "evidence" for patient blaming does not stand up to scrutiny........
Pretty good I thought, especially this
What I think it means that Commissioner's (who purchase care) should encourage Providers (who Commissioners pay to deliver care, and include CICs...
One thing I've noticed as someone with ME is that lack of insight many health professionals seem to have regarding the limits of their knowledge....
Thanks @Lucibee that's a good document that I'd not seen before.
If your daughter is light headed and tachycardic when upright have you considered orthostatic intolerance / POTS?
Yes indeed. Which is why there is no speculation as to the reason for the change on the Service Development website post mentioned above.
Just to add a personal note on this. I saw Dr Nacul through this service. The medical review was very thorough indeed, with regular followup...
@Hutan , thanks for your interest. No it's not a matter of money. For years Suffolk has used the Individual Funding Request process to finance...
Merged thread Specialist ME Clinic for Moderate & Severe patients in Suffolk suspended Last week Suffolk CCG's contacted the Patient / Carer...
Thanks @Peter Trewhitt . I wondered if I'd missed something obvious, as surely whoever wrote the briefing must have anticipated that the training...
What I don't understand is why Brine would mention the RCGP training material in the first place. Did he or whoever wrote the statement genuinely...
Yes @JaimeS ....madness. I think their implied rationalisation was that it was my fault that my illness had become chronic as in their view I was...
In their claims management diary (obtained under the DPA, they never expected me to see it) my insurer said something to the effect that my...
I don't think so.
Another installment in the lengthy process attempting to improve service provision in Norfolk and Suffolk. The Joint HOSC has requested a great...
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