Oh well spotted @Arvo
Please do continue to speak/write about this issue @Lucibee, your points about anchoring are vitally important. The 'CFS' Psychosocial lobby...
Around year 4 I had eyesight testing for reading glasses. Ha! Not that I could actually read much but I couldn't see anything close up. My...
That's a very respectful report from the BBC, much better than the written report.
I was extremely sensitive to touch/weight on my skin during the worst years, in addition to the light and sound sensitivities. Sensitivities is...
I had extreme Sound and Light sensitivity in the early years of ME (early 8 years). The more sick I was the worse the sensitivities were....
Self righteousness, self promotion, self congratulation, and preaching at sick people. Charming.
That word *inclusive* again. Claiming that encouraging ME sufferers to exercise is about disability inclusivity. This is not the first time....
[MEDIA] Tweet response from Hope for ME & Fibro NI: "Yes-well intentioned event but due to high number of concerns, the charity has issued...
[MEDIA] Tweet: "Dr Walitt and Dr. Nath defended their unsupported “effort preference” theory to other attendees at the 2024 Invest in ME...
Brian Wallit speaking at the 2024 Invest in ME Research Conference. Photo by Janet Dafoe [MEDIA]
Lord help us.
Emily Lim Rogers: 'Once the cause of AIDS was widely agreed upon by the 1990s, the virus-to-syndrome model became the predominant paradigm for...
That is a terrible idea. It will produce a load of amateur psychologists, over imaginatively attributing their customers with psychological...
2/1/24: 2024 Whittington Lecture at Georgetown with Dr. Anthony Fauci, Pandemic Preparedness and Response: Lessons from COVID-19 (39th min)...
. https://me-pedia.org/wiki/Ean_Proctor Dr. Ann McIntire's Frontline Program about ME/CFS (Vintage VHS), early 1990s? This documentary includes...
“Report of the Select Committee of Tynwald on the Petition for Redress of Grievance of Robin and Barbara Proctor” 19th April 1991, Isle of Man...
Fact is that 99.99999999 (for eternity) of ME sufferers ARE invisible - invisible to Janet Chute and Electric Robin. We are also all Unheard by...
Who could approach BACME and ask them if they are supporting this ill advised documentary venture that will be so harmful for pwme, and ask if...
So which 'major ME charity' is it that's supporting this very ill advised venture? If it's not the MEA or AFME, and I'll bet it's not Invest in...
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