‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal 'From harmful ‘therapies’ to social services...
. https://me-pedia.org/wiki/Ean_Proctor Dr. Ann McIntire's Frontline Program about ME/CFS (Vintage VHS), early 1990s? This documentary...
The claims of the documentary producer, Janet Chute, are pretty weird. She claims to want to explore how people with non visible disabilities...
[MEDIA] Tweet: 'Janet Chute emailed me for the names of volunteers. After I explained why it would be dangerous and unethical for people with...
@Lena Kjempengren - you may do well to make contact with Nina E Steinkopf https://x.com/Nina_Steinkopf https://melivet.com/ .
How much harm has this meddling woman caused with her unevidenced and fantastical beliefs about ME and the people who have it - Jenny Lynn, the...
Wow! Those so called therapists are in the grip of some serious and rather narcissistic delusions about our disease, and about us. They seem to...
I suspect it's both.
That poster puts 'Chronic Fatigue Syndrome' right at the top of the list of conditions/diseases. That looks like an agenda.
'Inability to remember what you are supposed to be shooting at.' .
Ha Ha Ha!!!! Better clear the place first! Some pwme have serious visual/spatial impairments. And the CCC does mention as a symptom -...
'The only problem with that is that it is not fair to ask people to ask for help when nobody knows what would help. They just end up feeling...
THIS Yep - all of what @JemPD said. We've had the 'Woman with ME (or CFS) swimming around the Isle of Thanet' with copious publicity, the...
The fault lies with the Drs who feel free to ridicule, denigrate, mock, to express and incite hatred towards certain groups of patients. Those...
That would be a fruitful subject for an incisive and intrepid journalist. How can NHS Drs provide safe and ethical services to the public when...
@Ellen * The pictures to the left of the Participant Information sheet are pretty confusing, and obscure. You may not know that some/many...
We know Recovery Norge was created to get round new consumer laws relating to alternative medicine, that testimonials would no longer be lawful in...
This exactly
RCPE webinar on #MECFS and #LongCovid [MEDIA] Tweet from KarenPhysioCoUK: 'Presentation done Key points: PEM is NOT "fatigue after...
Yep. When researchers etc say they have engaged input from/consulted with, People with ME - my heart sinks. It seems to be so easy to elicit...
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