"In rare cases where you disagree, feel free to comment, but please don’t be abusive. Any abusive language will not be tolerated, and anyone...
But it's not and never will be collaborative. Sarah Tyson and Russell Fleming don't do collaboration. They presume to speak for us, or do the...
I'd say predictably those comments have fallen on deaf ears. Nothing has moved on from 'the therapist knows best' and 'the rehab professional...
Yes, I get that, but I don't call it PEM. I'd describe PEM as more all encompassing, and it doesn't just go, I don't just come out of it, it...
PEM for minutes?
My concern about Sarah Tyson's understanding of PEM put me right off completing any more questionnaires for the PROMS project, after I'd exhausted...
@RaviHVJ wrote: "the NIH is the only institution with the resources to actually change our lives by funding science that leads to effective...
The NIH have dragged their heels for decades to avoid funding ME research, and avoiding approving ME research funds applications. While...
THIS .
Avindra Nath's ME Power point includes Cognitive Therapy for Brain Fog and lists 'Functional Disorders' as a symptom. Tweet content: 'Did you &...
Jonathan Edwards wrote: 'I have to be very careful to stick to what I know. The whole problem with these quack treatments, whether LP or GET, is...
Jonathan Edwards: 'I was not in a position to say to journalists that we have proof that people get worse due to LP.' You didn't actually have...
@Jonathan Edwards wrote: 'I have no proof that LP made anyone physically worse ...' Here are 40 accounts of people with ME doing Lightning in...
A rather over excitable Jennifer Mann demonstrating that her recent Telegraph interview ('I cured my CFS with my powerful mind') wasn't at all...
I think that assuming the majority of listeners or readers will apply any level of critical thinking to programs and articles featuring, or just...
In Treatment the onus is on the treatment inventor and provider of the treatment to ensure it works and is not just hot air (ha, I know that...
'any person who is recovered from the LP is granted an entry ticket to 'become a coach' as long as they tow that party line and stay recovered.'...
Excellent. 'the article is structured so as to be weighted in favour of Parker'. Yes. My great concerns were 1/ that Parker is such a slick...
Lightning Process ‘recovery’ stories cannot be given credibility because Lightning Process trains people to lie about their health. Lightning...
This .
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