The powerlessness is not just a feeling. It's a reality. Most NHS Drs/HCPs either dont believe in ME or are so misinformed as to be dangerous to...
The ME Association appears to be in the game of systematically undermining and disempowering ME patients, the very people the MEA are supposed to...
The Glasgow Standard (journalism student paper) interviewed Ewan Dale, ME Association Trustee, for a counter statement to the numerous quotes from...
Glasgow Standard Twitter [MEDIA] Tweet Content 'Those suffering from Long Covid have few options to get help for their condition. Some,...
Thanks for that @Yann04 ! We need some hard hitting journalism like this. Steve Topple doesn't mince his words: 'The BBC has exposed how an...
Who writes the MEA tweets, and FB posts for that matter?
'Food improving exercise tolerance.'. Disgraceful statement. Thanks for trying to get it changed. Parts of that document read like it was...
BACME Chair Anna Gregowowski: 'BACME think this module is an important educational resource' BACME would think that. The document is lame,...
For once a pwme Was awarded a medal for their work, 2023:...
2020 Interview about Lightning Process, with ME patient and advocate Joan McParland (Founder and former Chair of Hope 4 ME & Fibro Northern...
'The coach on the course stressed the importance of avoiding negative thoughts and words like "pain" and "fatigue", claiming using them can...
I think @sarahtyson has no intention of coming back here or working with us. She expressed her contempt for us and her hostility towards us and...
Did the MEA give funding (£90,000 ?) from the Ramsay Research Fund to this Toolkit project? If so I should think Dr Ramsay is turning in his grave.
That one of the designers of the Toolkit thought that PEM could last for a few minutes strongly suggests they really Don't Know what PEM is.
Is 16 weeks long enough?
A great many of us cannot read that on Twitter, because Michael Sharpe is so confident in himself and his work that he has blocked most of us on...
Absolutely agree @forestglip . It's perpetually convenient to dismiss ME bioresearch findings by claiming the results show the effects of...
'My rest involves sitting/lying down' Oooh nooo - My rest involves jumping up and down for 10 minutes, then running round the house shouting and...
'Compared with healthy controls, children with LC have objective impaired functional capacity (expressed by a low VO2 peak), signs of...
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