A number of high profile people, including celebrities, have gone public that they have long term Lyme. Off top of head, Daryl Hall (of Hall and...
Possibly - it was supposed to be published on Friday - then on Monday (today) but the article about Karen was left out to make space for 'a time...
Miranda in The Times today (but no Karen Gordon story today because that was postponed to make space for another story). Excerpts - ' Miranda...
[MEDIA] ‘The Times’ have told us that they have had to postpone the article featuring Karen’s case because of a time sensitive article they are...
Apparently it will be in the Times on Monday the 14th
They Are Didn't Stone and Carson train under Sharpe during his years in Edinbugh? From 1997 to 2011 Sharpe was a professor of psychological...
I also had a near identical phone conversation with AFME circa 2 decades ago - I badly needed the name of a legal advocate, re medical malpractice...
I'm so sorry you were put through that @RainbowCloud. The man you spoke with sounds like the Chair of the Sussex and Kent ME/CFS Society, Colin...
She should have read the room. .
The Main Headline this week was: 'Coroner demands urgent action to prevent further deaths from ME' Not .... 'Look at me gardening and buy...
"I remember those hellish years trapped in bed in darkness. I remember being unable to feed myself. I remember being unable to walk. I remember...
I gave the Sussex Patient Group as an example ..... Really, Can we have any trust in any Patient Group who are AFME members unless we know who...
She is blocking critical tweeters and hiding their tweets.
No, sorry, compassion is not just lovely words. It's really not 'compassionate' to spread the misinformation that in ME/CFS/LC “the cause and...
The press quote is from UK Newspaper 'inews' 10/10/2024 'Hart has found inspiration in all sorts of people – Nora Ephron, A A Milne and Brené...
What patient group? If it's the Sussex and Kent ME/CFS society, for example, I would put no trust in the feedback, as the Sussex Society...
2 replies to Garner's Comment on the Telegraph thread: 1/ "Oh yes, Norway, where the Drs have fallen for mind/body 'cure' scams. How naive of...
Paul Garner just put an utterly creepy and wholly disingenuous Comment under a recent Telegraph article. Please note his gross tactic. The...
@Amw66 and @Maat That session on the so-called management of #MECFS (at King's) appears to consist of simply copying/repeating a document that...
In my view the most important part of the NICE Section on Energy Management is this:...
Separate names with a comma.
