(Mis)Informed by BACME, by any chance? .
Peter Gladwell's profile on the BACME site: About Dr Peter Gladwell (BACME Board Member) BSc, PhD, MCSP. 'Pete is a Clinical Specialist...
I don't want a group of patients at the Bristol North Clinic speaking for me. Surely it was leaflets for patients written by the North Bristol...
'Trial By Error: A Deeper Dive into the Inquest’s “Findings and Conclusions” (Now updated with comment from Sarah Boothby O’Neill)' By David...
@bobbler wrote: "It feels like Gladwell has a vision 'for the next generation of ME/CFS rebrand' and I'm finding it scary that he is being...
Because the Care Plan writers's thinking is still embedded in the 'pwme are deconditioned and deluded, therefore need physical rehabilitation'...
It's BACME-Speak, still using trivialising language, favouring so called 'central sensitization' as catch all explanation, PEM lasts only hours or...
Thank You for this @bobbler. You have made numerous vital points. And I hope more people than me will take them on board. .
Nath's grotesque statements "left many Disappointed"? His statements left anyone with half a braincell Disgusted, more like. And Livid. And...
Sarah Boothby's 2nd Comment under David Tuller's Virology Blog article 'Further to my post above. I have since discovered a Juliette Hill was...
"I think it's really important to 11:29 look at stress in relation to chronic fatigue syndrome because often it can play a role in sort of many...
'I found the Mirror article interesting. Another woman with Very Severe ME was admitted to the RD&E in 2023 and they refused to do NG feeds below...
They do Graded Activity. It's goal oriented, with a timescale. They call it Building Up Your Baseline. This Sussex 'ME/CFS/Chronic Fatigue'...
"Colin Barton of the ME/CFS Society says: 'It would seem that those most in need are the most overlooked in Sussex and this cannot be right'."...
Hi @Dx Revision Watch - can you include the exclusions for the ICD10 G.93.3. It drives me nuts when even some patients call ME 'Chronic Fatigue'
So, Walitt and Nath's unevidenced, hyper-ridiculous pseudo-theorising is now Actually Undermining Realistic Assessment of the death of a woman...
"Over the last five years, the Department, through the National Institute for Health and Care Research (NIHR), has allocated £6.64 million of...
The Times have muddied the water by printing that letter. Now BPSers and the general public will pile in to opinionate and debate the sodding name.
Re "the 1 very cleverly worded Comment" (by 'Jim White') underneath The Herald article finishes with the sentence: "I don't know what causes ME...
And so are lots of ME sufferers. We are the same age as Wessely/White/Sharpe etc. But we have no private pension to look forward to. We are...
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