There never has been any kind of specialised ME ward in the NHS
@Jonathan Edwards wrote: "But it is not clear that Dr Weir's advice was well founded. The evidence for low blood volume is uncertain. There is no...
. MEResearchUK have published an overview of the Inquiry, and a narrative in quotes with media links for Weeks 1 and 2 of the on-going...
Devon Live. 3/12/2023 'Death prompts Devon hospital chief to speak out on 'ignored' illness' 'We highlight the case of 27-year-old Maeve...
Who is giving evidence after lunch?
We've just got to get rid of that word "Tired". It's being repeated in the Inquest. "Tired" is the most trivialising word, it leads the...
Who is the woman giving evidence right now? Beth Thomson dietician at RD&E being questioned by coroner now;
Yes there is interest, if you are up to it. thanks for all your summaries.
Telegraph journalist Patrick Sawyer has done a pretty good job here: 'ME, also known as chronic fatigue syndrome, is a debilitating disease that...
Re Alastair Miller's article in the Guardian 27/7/2024: Alastair Miller is still a Medical Advisor to the Sussex and Kent ME/CFS Society....
Yes, Great Letter. I am still on version 1. In letter 1 you write: "People with ME/CFS are offered ‘curative’ CBT, intended to break them out...
@dave30th In the 4th paragraph - do you mean 'bogus' ? 'This bougs perspective has been based on the views of a powerful cabal...' .
A Commenter in one of the nationals, article on the Inquest, Comments on NICE Guidelines for ME asked: Question: "What’s the cost/benefit...
OMG there are 2 types of people in the Comments to the Excellent Telegraph article. 1/ ME literate types who have actually read the article....
@Paul Keeble on twitter doing a good job on tweeting updates from the Inquest.
Describing inability to eat because too sick/weak as "self neglect" is grotesque.
"When she came to us, we did the Active Stand Test. It was normal!’ Some staff roll their eyes; some laugh." What an unprofessional lot of HCPs....
The clinical assessment toolkit is listed on the MEA Page called 'Ramsay Research Fund' https://meassociation.org.uk/category/ramsay-research-fund/
@Trish wrote: .... "I find it odd that the questionnaire is only to be answered, and therefore commented on helpfully, by people who have...
Yes. All £90,000 of it. What a disgraceful waste of Ramsay Research Funding. Those questionnaires are just incompetent.
Separate names with a comma.
