I see. So put that down to MEA leading people with ME a stray not for the first time. If CS wanted to give PG medical advice in a personal...
I guess whilst you’re still involved with them you may not wanna get into an official complaint. But this deserves one. Could you maybe share...
Yes. It’s not silly it’s something else.
Of course the MEA profiled him. Of course they did. It was one thing for individual sick people, especially if new to the illness, to be...
They just don’t like these ones, not quite mean spirited enough towards people with ME/CFS, and no one can make them follow them so they don’t.
I and the few other people that l’ve known offline have found it extraordinarily difficult to get referrals to assess for other conditions and...
You were clear, I understood. I think what is unusual is that despite your having an ME diagnosis on file you were granted investigation for your...
I skipped over the PG sections. It was really surprisingly good, the LC GPs and other sufferers made some great points. I’m so glad it ended on...
Yes absolutely. Except, homeopathy is pretty harmless, where as this is psychological abuse.
In England if a female person walks down the street with a neutral or unhappy expression on her face, she might find herself being told to...
They should be doing MRIs for people because ME symptoms overlap with many cancers and other conditions so an ME patient can’t be sure that their...
Yes. I wasn’t suggesting not trying to change things. I am unsure if sufficient ground work has been done for this to land well. But the there...
Me neither. Yes positives and negatives. I don’t know if we have enough in our corner yet.
How awful. A gloopy one. I think of a ‘sticky’ label as one that can’t be shaken off, nor can the negative effects of having it be shaken off....
Article refers to studies pointing to women with a BPD diagnosis as having a higher risk of suicide. Compared to what I couldn’t quite grasp. If...
Thank you. I haven’t read this updated version yet. But skimming the first section which I think remains more or less the same as before I am...
Yes that’s the strategy isn’t it? So I am not sure we should care about what he says.
There are multiple crisis going on now for people. So that will affect this. But I also wonder if people leaving Twitter and Twitter making it...
It is very useful.
Really good @tornandfrayed
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