Excellent points @Milo Even better question.
Not to de-rail the thread, but while we're piling on the betrayal of Health Canada...from what I understand, FM researcher Mary-Ann Fitzcharles...
Thanks @Snowdrop I've tried to connect Moreau - twice - to a metabolism researcher at McMaster U that I had a chat with. He was quite interested...
@rvallee We are preparing a response to the Health Minister. May I use your quote, anonymously, with the preamble "As one Canadian with ME...
Here was the reply from one of the MPs I copied when I also emailed the Federal Health Minister in early August: Dear Scott, Thank you for...
She's a failure. She could have acknowledged the zero research funding and committed to any amount - she could have acknowledged the...
I think we all pretty much agree that the global ME situation needs a paradigm shift by the institutions (political, medical, insurance, etc) that...
I don't believe him/her. The documentary they produced is proof that a 'compassionate' framing was not the intent, validated by the patients'...
I wanted to send them a quick email to say that I had taken a screenshot of this page as proof of their promotion of fraudulent research and...
Just wanted to list the different ways the GET/CBT model harms people with ME, directly or indirectly: Psychological - as Dr Klimas said -...
I concur, but, playing the long game, by attempting to engage them, even knowing most will refuse / ignore, frames us as reasonable and...
Perhaps instead of 'name and shame', the purpose of the site is to 'educate and inform' these physicians, so its not just a bitch and whine fest,...
Just discovered this other article on The Nib: A History of Human Guinea Pigs https://thenib.com/a-history-of-human-guinea-pigs [IMG]
Thanks for posting that very digestible article - my brain really liked the format of graphics and text.
Is the objective of the website to be a resource for ME patients, or as an advocacy tool to raise awareness about institutionalized harm?
I watched this very interesting documentary on the herbal Kratom - some parallels with cannabis and govt inducing 'reefer madness' hysteria -...
I hope there is a big push back for not including patients. I'd go as far as saying that without patient reps on the committee, any guidelines...
On a triathlon forum a few years ago, some idiot was saying being gay was a choice. I asked him to share with all what he was thinking the moment...
A real eye-opener about the nutrition industry on this STEM Talk podcast interview with investigative journalist Nina Tiecholz - highly...
Health Promotion becomes Harm Promotion.
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