I think one reason Germany and France are behind Scandinavia is or was the language barrier. The degree of psychologization of illnesses is bad...
[MEDIA]
Great achievement, many thanks to Evelien van den Brink!
I like this article in big parts and it's great that it is published by the Ärzteblatt Saxony. this part is a bit irretating: "Two studies from...
"I rarely get adrenaline surges, and when I do they mask my symptoms temporarily." It's the same with me. She doesn't say that she was feeling...
This post has been copied from a petitions thread; five following posts have been moved from that thread. off topic/ fun fact: this trial once...
off topic/ fun fact: this trial once got funding by the EU https://www.ncbi.nlm.nih.gov/pubmed/18277062 :banghead: if I remember correctly 300 000...
I agree and I am scared that severe ME patients could become much worse because of this operation and the effort to travel this far.
old thread: S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire...
There was a controversial doctor at this time in North Rhine Westphalia who offered expensive tests and unproven treatments for ME. This probably...
I guess several weeks in a rehab clinic can be much worse than GET where you can rest at home.
We don't have "real" GET in Germany (this one year therapy by a physiotherapist). We have psychosomatic rehab clinics for depression and all sorts...
https://www.s4me.info/threads/rituximab-and-placebo-response.9704/ (discussion of this thread mostly about the open trial)
I didn't listen to the programme. Based on your description I share your concerns. There will be patients who will go to "Lyme doctors" abroud...
and they still refer to "boom and bust" even they couldn't find such a behaviour at the magenta-trial
Karina was a competent adult, she wasn't a threat to herself or others, she wasn't neglected In this case it doesn't even seem important which...
I took a lot of risky medication prescribed by "Lyme experts" included a malaria medication (Hydroxychloroquine) :( I really wouldn't do this...
I thought private patients would tend to justify the high costs. The 2 anecdotes of people I remember who got the costs covered were not better....
I wonder why the anecdots of privat patients were nearly all negativ, only small improvements or even worsening. I think in these settings the...
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