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  1. It's M.E. Linda
    Post

    UK: Physios for ME

    I have added this to Nikki’s thread: [MEDIA]
    Post by: It's M.E. Linda, Feb 22, 2023 in forum: News from organisations
  2. It's M.E. Linda
    Post

    Closure of reMEmber (the Chronic Fatigue Syndrome Society) effective from 31st March 2023.

    Since the pandemic, I have enjoyed attending their annual conferences because they were run online. Very knowledgeable. I hope Bill and Janice can...
    Post by: It's M.E. Linda, Feb 19, 2023 in forum: General ME/CFS news
  3. It's M.E. Linda
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    Does one need to have “a certain standing” in the medical community to follow/read certain medical professionals?
    Post by: It's M.E. Linda, Feb 19, 2023 in forum: UK clinics and doctors
  4. It's M.E. Linda
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    @SNT Gatchaman thank you for providing screenshots/details of TG’s tweets because not all of us can read them thesedays. This thread was very...
    Post by: It's M.E. Linda, Feb 19, 2023 in forum: UK clinics and doctors
  5. It's M.E. Linda
    Post

    Northern Ireland: News from Hope 4 ME & Fibro

    Many thanks to @obeat The charity’s nurse has just confirmed to me that: “the final webinar on Severe ME, by Caroline Kingdon and her research...
    Post by: It's M.E. Linda, Feb 18, 2023 in forum: News from organisations
  6. It's M.E. Linda
    Post

    PEM without heart rate change?

    Hi @SunnyK I hope something here is of help to you. I have worn a FitBit Charge 4 (recommended to me by a friend in the local support group)...
    Post by: It's M.E. Linda, Feb 11, 2023 in forum: Cardiovascular and exercise physiology (CPET)
  7. It's M.E. Linda
    Post

    NHS England web pages on ME/CFS

    Moved posts Meanwhile I completed a simple ‘contact us’ form about a page on the NHS website last week, which went to NHS Digital, only to be...
    Post by: It's M.E. Linda, Feb 9, 2023 in forum: UK clinics and doctors
  8. It's M.E. Linda
    Post

    Northern Ireland: News from Hope 4 ME & Fibro

    Do you know whether this will be available afterwards as a video resource please? We are due to start Implementation of NG206 within our local...
    Post by: It's M.E. Linda, Feb 9, 2023 in forum: News from organisations
  9. It's M.E. Linda
    Post

    NHS England publishes guidance for the development of ICB (Integrated care board) joint plans

    Link to Parliament website which gives access to watch the proceedings via Parliament Live TV:...
    Post by: It's M.E. Linda, Feb 9, 2023 in forum: UK clinics and doctors
  10. It's M.E. Linda
    Post

    Grim ME and recovery broken hip with partial replacement op

    Sorry to hear your experience @Sallycatherineharris - I hope you are able to pace yourself very gently through the required recovery. It sounds as...
    Post by: It's M.E. Linda, Jan 19, 2023 in forum: General and other signs and symptoms
  11. It's M.E. Linda
    Post

    Closed 2022 UK Recruiting: narrative inquiry exploring the school experiences of teenagers with ME/CFS (doctoral research)

    Excellent info thanks. The above link by @Suffolkres only went through to a generic RCPCH page today, so I searched for the 2004 document ....
    Post by: It's M.E. Linda, Jan 2, 2023 in forum: Recruitment into current ME/CFS research studies
  12. It's M.E. Linda
    Post

    UK House of Lords/ House of Commons Questions

    SevereME: SNOMED coding - https://snomedbrowser.com/Codes/Details/52702003 I would guess that the vast majority of patients in the UK NHS system...
    Post by: It's M.E. Linda, Dec 21, 2022 in forum: General ME/CFS news
  13. It's M.E. Linda
    Post

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    On some Facebook groups, the search function allows you to ‘search within the group pages’ (that may be just within private groups possibly?) I...
    Post by: It's M.E. Linda, Dec 18, 2022 in forum: UK clinics and doctors
  14. It's M.E. Linda
    Post

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Nothing on MEA website, I found a further response by Dr CS of MEA within this Facebook post:...
    Post by: It's M.E. Linda, Dec 17, 2022 in forum: UK clinics and doctors
  15. It's M.E. Linda
    Post

    UK House of Lords/ House of Commons Questions

    Thank you @CRG - I thought my tweet of yesterday was depressing enough, but have amended to include your excellent breakdown & RT to include Tulip...
    Post by: It's M.E. Linda, Dec 15, 2022 in forum: General ME/CFS news
  16. It's M.E. Linda
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    For info - known issues with certain makes of mobile phones: “Hi Linda, I’m one of the team at Visible - I hope you don’t mind me reaching out!...
    Post by: It's M.E. Linda, Dec 15, 2022 in forum: Monitoring and pacing
  17. It's M.E. Linda
    Post

    Report on #SpeakUp project, to help improve health and social care provision for people with ME/CFS and Fibromyalgia in Sheffield

    We have finally been given the contact details of who will be leading implementation of the NICE Guideline in our County. Sheffield’s excellent...
    Post by: It's M.E. Linda, Dec 4, 2022 in forum: UK clinics and doctors
  18. It's M.E. Linda
    Post

    Understanding Long COVID; Mitochondrial Health and Adaptation—Old Pathways, New Problems 2022, Nunn et al

    It upsets me when people say they were athletes “before”, almost as if not being an athlete prior to infection means that any resulting ill health...
    Post by: It's M.E. Linda, Dec 3, 2022 in forum: Long Covid research
  19. It's M.E. Linda
    Post

    Who was it that said being in support groups leads to poor outcome?

    Fabulous blog @Lucibee - thank you
    Post by: It's M.E. Linda, Nov 22, 2022 in forum: General Advocacy Discussions
  20. It's M.E. Linda
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Me too. I found it buried in amongst the ‘Social’ emails, so “Thank You” @Trish !
    Post by: It's M.E. Linda, Nov 22, 2022 in forum: Monitoring and pacing
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