I wonder if Monbiot has had open pushback from editors at the Guardian? Maybe things like this and the letters published as a more subtle form...
They always try to move to to the 'all in the mind', psychological vs physical, etc narrative. It lets them avoid all the real issues and present...
But if there aren't solid studies it's understandable for researchers to not mention them in their summary of infections associated with ME. An...
There are different meanings to 'accept'. I think most Long-haulers do accept that it's likely true that 2021 will bring them continuing...
Are there any solid prospective studies on entroviruses and ME? I had the impression that there weren't many good studies there, but I haven't...
Linked to this new article:...
There are some people I've seen posting stupid and offensive things on twitter. There are more people posting things that don't make much sense,...
It's hard to find a way of phrasing things that's Crawley-proof. We need to be submitting full protocols!
My concern with this process is that it's easy for a brief patient 'priority' to be interpreted in a range of ways and then be used to justify...
I can see that, and agree they went too far that way, but if they think the next big fight coming up is going to be about the dropping of GET...
The phrasing of things like this is always difficult, but I think it's good for the ME Association to be cautious and not fall in to the trap of...
I really disagree with that. My reading is that the HRA's 'report' was designed to support PACE as much as it could. To me, it read like a PR...
What do people think about trying to push for research into the failing of the medical institutions who have caused so many problems for patients?...
Some things outside of the orthodoxy are worth complaining about. The mitochondria test she has been selling failed to be replicated, and a lot of...
There are problems with her that have led to complaints. She has made misleading claims in the past and I think of her as a bit quacky. I don't...
This post is in part responding to a discussion on the evidence for orthostatic intolerance in ME/CFS and potential treatments that have been...
It's also worth bearing in mind that Monbiot is the sort of journalist that a lot of people in the media Establishment would like to attack, so...
I wonder who is running the Edinburgh Long Covid clinic? Doesn't look like good people tagged in here: [MEDIA] If they're able to get away with...
It so complicated to write a thorough rebuttal for. I think that one of the ways PACE has fought back is that so many people feel ground down by...
I have no idea about any evidence around hair loss and shock/emotional distress, but as you'd only criticised the attribution to 'stress' I...
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