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Page 14 of 29
  1. Allele
    Post

    CBT- Jen Brea Twitter

    This is so true, Seven, and it's a direct outcome of the fake narrative of the psych school. Once you have a ME/CFS Dx, most docs stop looking. As...
    Post by: Allele, Mar 19, 2018 in forum: General ME/CFS news
  2. Allele
    Post

    CBT- Jen Brea Twitter

    If you have US$2000.00 and a doctor that agrees to Rx it....
    Post by: Allele, Mar 18, 2018 in forum: General ME/CFS news
  3. Allele
    Post

    Action for ME has joined S4ME

    Let us not allow it to get this far....
    Post by: Allele, Mar 18, 2018 in forum: General ME/CFS news
  4. Allele
    Post

    Our chronic fatigue syndrome/encephalomyelitis service is nice (?!), but is it patient friendly? experience of going beyond audit

    Post by: Allele, Mar 17, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Allele
    Post

    Low mood, poor quality of life and high symptom impact in adolescents with chronic fatigue syndrome/myalgic encephalomyelis, 2018, Neale et al

    Grr, the more I think about this the angrier I get at the low-hanging fruit of academia! ME/CFS is also "associated" (geepers, what an easy pass!)...
    Post by: Allele, Mar 17, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Allele
    Post

    Low mood, poor quality of life and high symptom impact in adolescents with chronic fatigue syndrome/myalgic encephalomyelis, 2018, Neale et al

    It is "associated" with a lot of things, Bub. You try having your career, income, social life, hobbies, stamina, independence, etc all sacrificed...
    Post by: Allele, Mar 17, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Allele
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    If I weren't 13+ years into the illness I would apply despite the travel etc. Do let us know if they shift that parameter at any point. ETA:...
    Post by: Allele, Mar 16, 2018 in forum: ME/CFS research news
  8. Allele
    Post

    House built on old golf course - yes or no ?

    Moi non plus! ;)
    Post by: Allele, Mar 16, 2018 in forum: Home adaptations, mobility and personal care
  9. Allele
    Post

    PIP Tribunal

    Dear wonderful Wonko, I'm so sorry. I wish so much better for you. May it be so!
    Post by: Allele, Mar 16, 2018 in forum: Work, Finances and Disability Insurance
  10. Allele
    Post

    does anyone get these symptoms? (mainly skin-based!)

    Yes, it's Rx, and must be compounded, I believe, in the US. In other countries I think it's still Rx but doesn't need compounding. I like...
    Post by: Allele, Mar 15, 2018 in forum: General and other signs and symptoms
  11. Allele
    Post

    does anyone get these symptoms? (mainly skin-based!)

    Ketotifen has helped me a lot with the skin rash/hive/eye itchy/etc MCAS symptoms. The fasciculations come and go without any rhyme or reason...
    Post by: Allele, Mar 15, 2018 in forum: General and other signs and symptoms
  12. Allele
    Post

    Nature Correspondence: response to Sharpe and Chalder

    Wonderful! Thank you for persevering and getting your excellent letter published.
    Post by: Allele, Mar 15, 2018 in forum: General ME/CFS news
  13. Allele
    Post

    David Tuller - Trial By Error: The Dutch Review; My Trip; Bristol's Silence

    Don't be rooed!
    Post by: Allele, Mar 13, 2018 in forum: General ME/CFS news
  14. Allele
    Post

    Five patients made 8,303 emergency calls in a year - BBC News Website

    I feel like there is a nasty campaign of scapegoating and outright making up "needy" people to justify as you say service cuts. The whole trend...
    Post by: Allele, Mar 13, 2018 in forum: Other health news and research
  15. Allele
    Post

    Action for ME has joined S4ME

    While I wholly understand peoples' concerns, the reality is that for all we know user @pootietang69 could be EC, @fluffmygarfield could be SW and...
    Post by: Allele, Mar 13, 2018 in forum: General ME/CFS news
  16. Allele
    Post

    Five patients made 8,303 emergency calls in a year - BBC News Website

    Yes but deploying a vehicle and personnel 300 days a year is a response, if we're to believe that. The article said the "top five" callers called...
    Post by: Allele, Mar 13, 2018 in forum: Other health news and research
  17. Allele
    Post

    Trial By Error: A Letter to Archives of Disease in Childhood

    And so it naturally follows that standing on a magic circle (instead of the vicious circle, of course) and shouting STOP is the answer to...
    Post by: Allele, Mar 10, 2018 in forum: General ME/CFS news
  18. Allele
    Post

    Mark Edwards: What relationship do stressful life events, neglect & abuse have with functional neurological disorder (conversion disorder)?

    I really need to know what adverse childhood events caused these peoples' professional sociopathy.
    Post by: Allele, Mar 9, 2018 in forum: Other psychosomatic news and research
  19. Allele
    Post

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Me too. I sniggered :emoji_flushed:
    Post by: Allele, Mar 9, 2018 in forum: Open Letters and Replies
  20. Allele
    Post

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Here's to you, Webdog :emoji_champagne_glass: Excellent communications all around, and thank you for sticking to it. I especially love the pivot...
    Post by: Allele, Mar 9, 2018 in forum: Open Letters and Replies
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