If you're too healthy for a wheelchair, but too sick to walk for more than 30-60 minutes without feeling uncomfortable, consider a good e-bike (a...
It's easier to claim to be a victim of the close-minded that want to suppress your innovative ideas, than to admit your ideas are the same old...
I have a copy of the full article if anyone wants.
I don't like is the focus on deconditioning. I often feel like I'm under the influence of a mildly toxic sedative. This has nothing to do with...
My guess is that the lack of coherence is due to different authors having different opinions.
That sounds like Nath doesn't like the psychobabble either.
I recall writing on this forum multiple times about how my body, when not in PEM, appears to be unable to fully sense whatever problem it is that...
If PEM was called next-day malaise it would help. In these situations you never know if the other person is confusing PEM with feeling tired after...
Nausea discourages people from eating things. Pain discourages people from doing things. Fatigue also discourages people from doing things, in a...
How I actually experience effort, fatigue and PEM: There is an initial mental barrier to initiating activities that might lead to increased...
Yes, I have obvious problems with initial orthosttic hypotension. You don't need sophisticated tests to see it. It's easy to replicate if you...
It seems like this isn't receiving much attention from patients. Maybe because o the registration process. Most of the ideas posted so far seem to...
I suspect I have postexertional sympathetic overactivation. I think it's just a consequence of exertion being somehow physically more stressful...
They feel different to me.
The psychosomatic view is incoherent and on closer inspection looks more like a collection of depreciating prejudices than a serious attempt to...
I think studying blood pressure regulation is a good idea, but I can't judge whether autoantibodies is the right hypothesis. All considered this...
https://pubmed.ncbi.nlm.nih.gov/25957174/ It sounds like it might be relevant. Nav1.7 is also expressed in the hypothalamus where, among other...
I improved significantly while hating the lightning process and thinking all the mind-body stuff is nonsense and not believing that I could...
Yes it has been confirmed. PS: but for now it's just a hypothesis that it has something to do with my symptoms. I'm waiting to hear from my...
A clinical geneticist believes that a rare variant in the SCN9A gene could be responsible for at least a part of my symptoms. The variant is...
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