Another interesting observation: during a PEM day, my stress level went down after a good meal. This is something that I've seen many times before...
The observation agrees with my pacing strategy that aims to arrive at the end of the day feeling like I have some spare energy (instead of being...
It's an interesting toy and PEM is visible in the data it collects. It tracks steps per day (imprecisely), heart rate, stress level, body battery,...
It seems to be just another dubious pet theory that is stuck to when it should have been abandoned long ago. For private practitioners, these...
Our results show that glutamate and serotonin are involved in brain connectivity alterations in areas of the visual, salience, and limbic systems...
So where is the evidence that any of these illness are due to some defect in the interface between mind, brain, body? Can the authors even define...
Lately I'm thinking that PEM must involve neuroinflammation, and that's why there is malaise. Maybe some proof-of-concept experiment could...
I don't know much about CRPS. Is this relevant to ME/CFS?
Do you think that there is phenotype overlap between this group of diseases and ME/CFS?
Also it's more of the same patient blaming (shifting responsibility to patients). Because obviously the predictive coding thing will be evoked to...
The "predictive coding" idea does not seem to align with how my fatigue behaves. One of the most bizarre aspects of my illness is the disconnect...
Oh wow that sounds like they need to do some *checks notes* reality testing.
Facial expressions play a role in communicating our emotions to other people, and voice is also important. Do you think that your ME/CFS affects...
I feel like I have to explain because they can see on my face when the fatigue hits or the blood drains away from the brain and they will...
@Kitty speaking is a bit of a problem area for me too. As my ME/CFS fluctuates, my ability to communicate does as well. How much I trust people...
It's nauseating how these people claim to have the desire to help people with (what they see as) mental disorders and yet act with disrespect...
It's only available in North America.
In what way? You can delete the private details.
Re. autism. An interesting thing is that people with autism engage in a behaviour that is called masking, which as I understand, is faking being a...
What does that involve? Physical activity or other things?
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