Also I tend to not feel well in a lot of environments as direct effect of the illness on the body. Fatigability, orthostatic intolerance,...
Thanks for the supportive comments. The whole experience of getting ill and being disbelieved, mistreated and becoming an outcast from society has...
I'm in my 30's with and well enough to leave the house regularly. I've been able to put my life a bit more in order, which is great. I notice that...
Hot take: these long philosophical discourses on medically unexplained symptoms are medical narcissism. It's easier to engage in these discourses...
Difficulty explaining symptoms to others leads to others coming up with their own explanations and we know how that tends to end.
One need only look at how things like POTS are psychologized to understand at least a part of the why (an assumption is made that the malfunction...
Psychosomatic explanations for illness are a placeholder that exists to control patients until the biomedical science catches up and makes the...
Put in on MEpedia.
POTS coincided with abnormal breathing for me. Difficulty holding breath due to the intense discomfort. Rapid breathing with little pause. The...
I have mostly little affect. It depends a lot on how fatigued I am on that day. An exhausted brain doesn't do much emotions because that is an...
I often find myself thinking that this wave of post-psychoanalysis psychosomatic therapies is the product of the new age movement. A lot of it is...
For me the take home message is a) this seems to be more evidence that hormone dysfunction is a possible path to ME/CFS. b) structural genomic...
Long read sequencing characterises a novel structural variant, revealing underactive AKR1C1 with overactive AKR1C2 as a possible cause of...
This innocent child is beginning to have doubts about their FND saviors.
If we had an easily accessible diagnostic test for PEM, we could tell schools to use it on children that are increasingly absent from school. That...
The patient's voice is important they said, while opposing and misrepresenting the majority patient voice.
Why is this nonsense being presented as scientific explanation? That's just a vague speculation. The references have barely anything to do with...
They write "It is time for another perspective", but then repeat the same old dogma that has never worked when reasonable standards of evidence...
Okay, sorry. I misunderstood.
The low participation from long covid patients could be due to the messaging and information around DecodeME. It was made with ME/CFs in mind,...
Separate names with a comma.
