PACE is one of the best examples they could find? That says volumes.
I thought you're not supposed to use statistical averages to draw conclusions about individuals. And there are thousands of rare diseases. They're...
It seems likely that these ideas and false statistics have influenced how mothers with children with ME are treated. A few weeks ago I saw a...
I would have thought that autonomic dysfunction would be more pronounced in ME/CFS because orthostatic intolerance is a diagnostic criterion for...
A good way to explain how absurd these attempts to treat unexpained somtic symptoms really are is this: If I told you that I have a drug that can...
A paper on the gene variants in the mother and children: https://academic.oup.com/europace/article/23/3/441/5983835?login=false
https://edition.cnn.com/2023/06/04/australia/australia-kathleen-folbigg-attorney-general-hnk-intl/index.html There is now evidence that her...
It could be seen as reasonable if the patients were depicted as having some defect in their ability to judge what is appropriate and good,...
I worry about the possibility that now that the biomedical view of ME/CFS appears to be slowly winning, psychotherapists who previously offered...
The eye movement part of EMDR gives the strong impression of being merely a theatrical placebo.
My impression is that what is being proposed is a kind of immune defect resulting from insufficient integration of fibronectin into immune...
Ouch, Brutal. :laugh:
I'm trying to catch up with Prusty's ideas at the moment and it's hard to follow and understand. It will be easier once the paper is published. A...
For example one of variants I have, one where loss of protein function on that allele is nearly certain according to prediction tools, has to do...
Ron Davis believes that 25% of ME patients have multiple sclerosis. [MEDIA]
This is the kind of study that could be useful in ME/CFS. In my own genome I've found about 50-100 of monoallelic mutations that are predicted to...
And nobody was surprised.
Patients generally don't believe that psychotherapy can cure ME/CFS (or that psychological factors cause the illness). That's not dualistic...
Maybe because poor population mental health is not caused by a lack of access to psychotherapies?
Are they collecting data on who has PEM? If not, they cannot draw conclusions on ME/CFS as defined by the IOM. We've seen a number of studies...
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