This study is reporting the presence of several toxin-like peptides in covid-19 patients. What an interesting finding. I wonder if that poisoned...
Yay, I'm finally getting the study of rare genetic variants in ME/CFS that I wanted.
Good article on severe ME. Milder forms of the illness need to be included to avoid perpetuating the same stigma that the article denounces.
None of this will reduce the chance of infection. It could maybe help reducing the severity of the problems associated with infection but I...
I sometimes wonder if the most zealous BPS proponents were at some point in their lives the kind of patient that they see in ME/CFS patients. The...
I recommend contacting https://x.com/mediumwhite He has criticized the charities and I think he has a point. I don't remember all the details. He...
Why is "poorly understood" a problem? I would be more concerned by claims of it being understood. We don't understand the cause or the...
The lack of sympathy is because people think we have control over the situation, but are failing to make the choices that would allow us to solve...
We don't even need to crack ME/CFS to alleviate a lot of the suffering. We could do it right now with the knowledge we have. It's not happening...
In my opinion health research is on the wrong path because so much of it seems to be an attempt to make money. Instead of inventing some expensive...
I've been wanting to do something like this but it's too much effort for me. I feel like I'm eating too much and have wondered whether that could...
I don't want to hide the disability either. I want positive relationships where I can be myself. Hiding disability out of fear of of negative...
How would you do it? Suppose you're sitting at a table at some informal event and are having a conversation. You're asked about what you...
Or I could be even more vague and say that my work and education history is unusual in a tone that reveals it's not unusual in a pleasant way....
Yes, but it's easier to have negative experiences than good ones. The bad experiences count more on a emotional level than the good or neutral...
The hardest thing in meeting new people has been revealing that I'm disabled! Typically, when meeting a new person and having a conversation, the...
Maybe there isn't a clear or large increase visibile in the data because the healthcare system is generally bad at diagnosing ME/CFS without...
Medicine recognizes three types of orthostatic intolerance: vasovagal syncope, orthostatic hypotension, and postural orthostatic tachycardia...
I have no illusions about avoiding the virus entirely, but maybe I can avoid a portion of future infections and lessen the severity and risk of...
I'm spending more time indoors and want more protection against the virus. A few years ago nasal sprays were claimed to be effective against the...
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