Similar to how a muscle can feel unpleasantly tired and less capacle of doing work, the ability to think can feel impaired, be accompanied by...
I have long believed that in my illness there is some problem with blood sugar regulation. I had frequent mild hypoglycemia or the exact same...
Yes that's roughly the angle I want to approach it from. And to also explain how little everyone else involved knew and how wrong they were. One...
I'm going to tell an anti Garner story. One of humility and human fallibility in the face of great uncertainy and despair.
Mine is a sad story about senseless suffering and abandonment. A bad problem made much worse by human flaws in everyone involved. Things could...
Yes.
If you had 10 minutes to tell someone about your experience with ME/CFS, what message would you focus on? Your listener would be an average...
It's more the direct result of medicine not being able to treat certain problems, even refusing to acknowledge them or bullying patients with...
[ATTACH] What do the forum's experts think about this?
If we only need some way to show that physiology in ME is abnormal, then the 2-day CPET, invasive CPET, and hypoperfusion findings should offer...
You sound similar to me in terms of activity limits. Are you able to work?
What they are thinking: we need to psychologize this some more for our job security and career. I would be willing to bet that the way they...
Well written and argued. People have great difficulty understanding subjective experiences that difer greatly from their own. In this instance,...
It seems that a disadvantage of closed meetings is that questionable ideas can go unchallenged by outsiders.
In my mind, PPI exists to make sure the interests of patients and the public are adequately represented. The BPS research into ME/CFS is an...
The obstacles are Finding out about opportunities Not knowing what I will be expected to do (which is important for someone who must pace...
New research from Case Western Reserve University and University of Toronto neuroscientists finds that the brains of autistic children generate...
People should be careful when approaching lived experience with ideology, because it's easy to fall into behaviour of selfishly trying to impose...
To answer my own question: Currently we study PEM almost exclusively by collecting information from self-reported symptoms and by doing 2-day...
Publishing false, misleading, or dubious claims should be illegal and punished. The potential of research to do harm by disseminating false...
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