My personal experience is that loading up on fluid and salt has a fairly strong positive effective when certain symptoms are bad and especially in...
By legal protection I mean approximately this: a prohibition to manage patients as if they only had a psychological or psychiatric problem when...
It seems that the fundamental issue is how to handle patients who don't clearly fall into either the "disease proven by objective test" or...
I suspect that there are multiple kinds of fatigue that the same patient can experience. Or maybe it's better to think of different aspects of...
Digestion is maybe exacerbating the already existing blood flow problems towards the muscles and extremities as more blood is directed towards the...
Perhaps the reason ME/CFS is misunderstood is because our experience of fatigue and exertion intolerance is hard to comprehend. Fatigue makes...
The proponents of these ideas are unable to question them even after causing the death of a person. This shows that patients need legal protection...
Sure.
I thought this was one of the more interesting studies in the last years. I would have applied as PPI representative had I seen this earlier.
I'm wondering about the reverse causation. Can having a chronic illness lead to traits that resemble the concept of neurodivergence? For...
The treatment (ABA) is known to increase distress and suicidality in autism.
@forestglip the objection the autism advocates are making is similar to the one we make with regards to the lightning process. It's like claiming...
In my opinion it doesn't take this level of effort to notice these connections.
For me bread seems to induce fatigue, low mood and some mild irritation in the digestive tract (a scratching feeling). Yes because it's junk...
Maybe this will finally get me to stop eating bread entirely, after spelling it out that I'm reliably a little bit worse on Mondays and that the...
I have a regular habit of buying and eating bread on Monday because I like it. I definitely, 100% tend to be more symptomatic on Monday after...
Also I notice that as my illness improves, I also become more able to try new things. Like self-help courses or sports. So it's possible that...
The patient had covid infection in October and miraculously recovered in December thanks to LP, and clearly not due to the passing of time. PS:...
My POTS coincided with small fiber neuropathy and the treatment for POTS (salt water, and avoiding excessive exposure to triggers) were helpful....
What may have happened is the human tendency to want to fit diseases into neat boxes. POTS was a neat box where various kinds of orthostatic...
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