Sorry, I gave the impression that I was addressing you when I was talking about the 50% but you had indeed not expressed any scepticism about it...
Sure have but are any in the UK? And if they are, how can they get funding to support themselves if the reviewers at the MRC are still barking?
But don't the studies that look at it look at PEM as a criterion (which you said you didn't have, I think)?
I was lazily relying on this meta-analysis, but are the studies all poor-quality? If they are, do we have any better studies that would suggest...
I understand your concern but ME/CFS has been failing to get research funding forever, and getting a bigger group calling for funding could be a...
I'm surprised this is going down so badly here. We have to build research capacity. Yes, money can get wasted in things like this (RECOVER!) but...
That's great, and very exciting for us! Thank you for getting involved.
Those are all very good points but I'm hoping we can still help @paulendat find a way forward. Any thoughts?
I take your point but @paulendat is faced with 1,000 self-diagnosed people on the Internet. How can he apply a filter so that he gets the people...
That's correct, ME/CFS is diagnosed on the basis of patients reporting symptoms - there is no diagnostic test.
Excellent idea! And thanks so much again to @paulendat for this offer.
A lot might be interested, though, and able to watch or even just listen passively - and some might also be able to actively engage. And not all...
Perhaps we here could help by suggesting what might be a good screening questionnaire, if @paulendat is interested. And maybe one specifically...
That's good news! Is the programme still giving out new grants?
Weren't all those RECOVER grants cancelled by the new administration?
Thread here.
All one word, 'PrecisionLife' - here's a thread on it.
I'm all for it! I am basically 5 years old as far as understanding biology goes, brain fog or not! Great idea, @jnmaciuch :thumbup:
You've said elsewhere that we won't be able to say that ME/CFS is a disease, rather than an illness, until we can demonstrate pathology. If...
Thanks, @jnmaciuch, I'll have a look!
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