Please help cheer me up! Long-term immobility causes osteoporosis, sarcopenia (muscle-wasting), worse blood-sugar control, poor cardiovascular...
I'm surprised it's even that high.
And I thought CFS was bad...
I think this will be a very interesting discussion but that we have to bear in mind that we're not in control of what symptoms are named (more's...
Fresh hell.
By the time we've got to the MRI department, a lot of us will have been pretty PEM-ed up, or well on the way there.
I haven't been entirely following this but would it be helpful to have MRI scans of brains or other bits of PwME? Many of us will have had them...
All sorts of routes seem to lead to an experience that looks like the PEM from muscular exertion - those routes include mental effort, strong...
That's a pity. I wonder if they can be prodded to do so? Or to hand over their data to someone who would? I wonder if we have people here who...
I thought the problem was with replicability but I've just done a bit of a search where I thought I'd seen that and I'm wondering if my impression...
I mean the Snell, Steven, VanNess etc. studies in which they got PwME into the lab, and healthy controls, ran them all through a 2-day CPET and...
I thought there was some question about whether the change on the second day was a solid and replicable finding?
There's a BBC story online today with the headline, "NHS billions wasted as bipolar patients left 'forgotten and failed'", but I'd agree that this...
This raises the question of why serendipity hasn't yet coughed up a drug for ME/CFS, given that there are presumably tens of millions of us...
Have they still not done a GWAS on Long Covid? Will DecodeME be the only GWAS to include PwLC? We've discussed this before, how to properly...
I can see that perspective but I think that @hotblack's original question of whether you can have asymptomatic ME/CFS makes that perspective...
I don't think that's correct. I'd say that ME/CFS isn't currently defined as the presence of symptoms but diagnosed by the presence of symptoms....
I suppose the question is, maybe, suppose we had a test? And it would be like having high blood pressure without measuring your blood pressure,...
That's very surprising!
What are the chances of the non-biologists among us understanding your paper? Wondering if you could maybe write a very top-level summary of the...
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