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  1. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Well done to @MEActNetUK trustees, Denise Spreag, Janet Sylvester & Malcolm Bailey, your e-letter, “The ME community support NICE and reject the...
    Post by: Tom Kindlon, Jul 19, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  2. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    As the second tweet says: “If accepted, our response will be published within 14 days, at which point we will share it publicly.”
    Post by: Tom Kindlon, Jul 18, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  3. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Thanks to the World ME Alliance for coordinating a joint response which has been submitted now.
    Post by: Tom Kindlon, Jul 18, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  4. Tom Kindlon
    Post

    Daily Maverick - Collusion to exclude Long Covid - the long history of energy limiting disability denial by insurance firms

    It’s good if the issue is highlighted. But like a lot of articles, it doesn’t explain the mechanism as to how having CBT and/or GET seen as safe...
    Post by: Tom Kindlon, Jul 17, 2023 in forum: General ME/CFS news
  5. Tom Kindlon
    Post

    Daily Maverick - Collusion to exclude Long Covid - the long history of energy limiting disability denial by insurance firms

    It links to this earlier piece I’ve just listened to: “Exhausting the exhausted – how employers & insurers cruelly add to the burden of Long...
    Post by: Tom Kindlon, Jul 17, 2023 in forum: General ME/CFS news
  6. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    There is also this from the main PACE Trial paper in the Lancet
    Post by: Tom Kindlon, Jul 16, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  7. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Some people might be interested in replying to Prof Michael Sharpe. See linked tweet. I'm blocked, so Prof Sharpe won't see my comments* but I...
    Post by: Tom Kindlon, Jul 16, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  8. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Prestigious BMJ promotes ME/CFS misinformation 15th Jul 2023 Katie Johnstone The prestigious British Medical Journal (BMJ) has published an...
    Post by: Tom Kindlon, Jul 16, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  9. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I've seen someone say in a private conversation that e-letters to the Journal of Neurology, Neurosurgery & Psychiatry should be kept under 600...
    Post by: Tom Kindlon, Jul 14, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  10. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Well done to Dr Shepherd of the ME Association for his e-letter on the BMJ website https://www.bmj.com/content/382/bmj.p1621/rapid-responses
    Post by: Tom Kindlon, Jul 14, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  11. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I thought I would explain to this co-author the importance of the conflicts of interest.
    Post by: Tom Kindlon, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  12. Tom Kindlon
    Post

    Australia: News from Emerge Australia

    "ME/CFS And Long COVID Education In Demand At GPCE Sydney 2023"...
    Post by: Tom Kindlon, Jul 13, 2023 in forum: News from organisations
  13. Tom Kindlon
    Post

    News from Australia

    Report on Parliamentary Friends For ME/CFS https://www.emerge.org.au/news/parliamentary-friends-for-me-cfs/
    Post by: Tom Kindlon, Jul 12, 2023 in forum: Regional news
  14. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Thanks. Hopefully there will be a number of responses. I’ve shared the guidelines you highlighted on Twitter along with a link to the web archive.
    Post by: Tom Kindlon, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  15. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    There must be a press release somewhere. It would be interesting to see it.
    Post by: Tom Kindlon, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  16. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    White et al. are being misleading when they say graded exercise therapy is symptom dependent. Here are some extracts from the PACE Trial manual...
    Post by: Tom Kindlon, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  17. Tom Kindlon
    Thread

    Thesis System and methods to determine ME/CFS & Long Covid disease severity using wearable sensor & survey data, 2023, Sun

    Free fulltext:...
    Thread by: Tom Kindlon, Jul 11, 2023, 21 replies, in forum: ME/CFS research
  18. Tom Kindlon
    Thread

    (BMJ) "Where do viruses hide in the human body?", 2023, Extance

    https://www.bmj.com/content/382/bmj.p1156 Feature Covid Unanswered Questions Where do viruses hide in the human body? BMJ 2023; 382 doi:...
    Thread by: Tom Kindlon, Jul 9, 2023, 2 replies, in forum: 'Conditions related to ME/CFS' news and research
  19. Tom Kindlon
    Post

    Severe ME Day, August 8 2023 and Severe ME week

    One month ago to August 8, severe ME day. I have a Pinterest board with 564 pins on severe ME/CFS here...
    Post by: Tom Kindlon, Jul 8, 2023 in forum: General ME/CFS news
  20. Tom Kindlon
    Post

    Severe ME Day, August 8 2023 and Severe ME week

    From the ME Association: #SevereMEWeek2023 - We need your stories, please..... #SevereME Week is a time to raise awareness of those in the...
    Post by: Tom Kindlon, Jul 8, 2023 in forum: General ME/CFS news
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