Joan McParland made this public post on Facebook a couple of hours after her MBE was publicly announced: I am completely overwhelmed as I wasn’t...
This presentation has some data on recruitment e.g. “How did you hear about DecodeME?” Data Dashboards: Conference presentation by David Perry on...
Slides
A lot more deserving than say the (earlier) awards for Peter D White & Simon Wessely whose work/writings set back the ME cause decades, who argued...
Congratulations to the indefatigable Joan McParland on her newly-announced MBE* "Mrs Joan Elizabeth McParland, For services to People with...
http://journals.ed.ac.uk/eor/article/view/8125 Data Dashboards The advantages of having access to data insights when conducting large scale...
CLINICAL SPOTLIGHT | GENERAL MEDICINE AMBULATORY MEDICINE HOSPITAL MEDICINE INFECTIOUS DISEASES June 15, 2023 Long COVID and Chronic Fatigue...
June 9, 2023 recoverCOVID.org On May 25, 2023, RECOVER shared its “first look” into findings from the adult cohort study. The study, titled...
New recording here for the May 2023 IACFS/ME virtual journal club with Matthew Durstenfeld, MD, MAS - CPET in Long COVID. : [MEDIA]
Thanks. Main other ones are Tumblr and Pinterest, and also post to some mailing lists. Am on LinkedIn but mainly use that just to post on some of...
https://www.emerge.org.au/get-involved-in-research/ PARsing PEM: does post-exertional autonomic recovery (PAR) impact post-exertional malaise?...
I think it’s great the amount you post on Mastodon about ME/CFS matters. Without you, I think a lot of news-y items would never get posted there.
Lay Summary: “Welcome to My World”: A thematic analysis of the lived experiences of people with Myalgic Encephalomyelitis during the UK COVID-19...
13 slides from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams:...
The results are supposedly based on some sort adjustment for placebo. Hopefully there will be a full paper with more info on all the details.
https://ard.bmj.com/content/82/Suppl_1/129.2 Inflammation-induced pain and fatigue in fibromyalgia and ME/CFS and role of variant connective...
I can't remember whether this was posted here before or not: https://www.nih.gov/mecfs/events Upcoming Events Save the date for two NIH ME/CFS...
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