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  1. Tom Kindlon
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    NIH ME/CFS Advocacy Call: May 1, 2023 Video [MEDIA] Transcript https://www.nih.gov/mecfs/nih-me/cfs-advocacy-call-may-1-2023 Presentation:...
    Post by: Tom Kindlon, Jun 8, 2023 in forum: News from organisations
  2. Tom Kindlon
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    ME/CFS-like illness following COVID-19 slides: https://www.cdc.gov/me-cfs/pdfs/21-sec-call-may-17-2023-skarbinski-mec-fs-after-covid-508.pdf Page...
    Post by: Tom Kindlon, Jun 7, 2023 in forum: News from organisations
  3. Tom Kindlon
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    For those that don't know it, here are the questions for the Work and Social Adjustment Scale. According to the press release, CBT was shown to...
    Post by: Tom Kindlon, May 31, 2023 in forum: Other reviews with a public consultation process
  4. Tom Kindlon
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I just tagged the ones I had missed:
    Post by: Tom Kindlon, May 30, 2023 in forum: Recruitment into current ME/CFS research studies
  5. Tom Kindlon
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I tagged a full tweet full of people who actively tweeted about #LongCovid in this thread: I recall @ahandvanish did retweet or quote tweet one of...
    Post by: Tom Kindlon, May 30, 2023 in forum: Recruitment into current ME/CFS research studies
  6. Tom Kindlon
    Thread

    Effect of prebiotic & probiotic supplementation on reduced pain in patients with fibromyalgia syndrome: a double-blind, placebo-cont.., 2023,Çİn et al

    https://www.tandfonline.com/doi/abs/10.1080/13548506.2023.2216464 Effect of prebiotic and probiotic supplementation on reduced pain in patients...
    Thread by: Tom Kindlon, May 28, 2023, 0 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  7. Tom Kindlon
    Post

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Merged thread Free fulltext: https://academic.oup.com/sleep/advance-article/doi/10.1093/sleep/zsad069/7177603 Beyond the Symptom: The Biology of...
    Post by: Tom Kindlon, May 28, 2023 in forum: ME/CFS research news
  8. Tom Kindlon
    Post

    Reduced exercise capacity, chronotropic incompetence, early systematic inflammation in cardiopulmonary phenotype Long COVID, 2023, Durstenfeld et al

    Free fulltext: https://academic.oup.com/jid/advance-article/doi/10.1093/infdis/jiad131/7159960 JOURNAL ARTICLE ACCEPTED MANUSCRIPT Reduced...
    Post by: Tom Kindlon, May 25, 2023 in forum: Long Covid research
  9. Tom Kindlon
    Post

    Proteomics and cytokine analyses distinguish myalgic encephalomyelitis/chronic fatigue syndrome cases from controls, 2023, Giloteaux et al

    Post by: Tom Kindlon, May 19, 2023 in forum: ME/CFS research
  10. Tom Kindlon
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    This meeting is on a less than one hour wherever you are in the world In advance of this meeting, the CDC have today posted this update on their...
    Post by: Tom Kindlon, May 17, 2023 in forum: News from organisations
  11. Tom Kindlon
    Post

    Blue Sunday: The Tea Party for M.E. 2023

    Post by: Tom Kindlon, May 13, 2023 in forum: Fundraising
  12. Tom Kindlon
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Post by: Tom Kindlon, May 12, 2023 in forum: News from organisations
  13. Tom Kindlon
    Post

    ME Awareness Day / Week / Month, May 2023

    Post by: Tom Kindlon, May 12, 2023 in forum: Advocacy Projects and Campaigns
  14. Tom Kindlon
    Post

    ME Awareness Day / Week / Month, May 2023

    The very good free CPD course on ME/CFS created by a team led by Dr Nina Muirhead https://www.studyprn.com/p/chronic-fatigue-syndrome has been...
    Post by: Tom Kindlon, May 12, 2023 in forum: Advocacy Projects and Campaigns
  15. Tom Kindlon
    Post

    ME Awareness Day / Week / Month, May 2023

    https://www.cdc.gov/me-cfs/resources/awarenessday.html The page was also linked in the weekly email update from the CDC which also tweeted about...
    Post by: Tom Kindlon, May 12, 2023 in forum: Advocacy Projects and Campaigns
  16. Tom Kindlon
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Post by: Tom Kindlon, May 12, 2023 in forum: News from organisations
  17. Tom Kindlon
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    What the Health Research Board funds isn’t really politicised i.e. politicians don’t decide what does and doesn’t get money. So probably the...
    Post by: Tom Kindlon, May 1, 2023 in forum: Recruitment into current ME/CFS research studies
  18. Tom Kindlon
    Post

    Exploring the Genetic Contribution to Oxidative Stress in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2023, Hampilos et al

    Thanks. Wasn’t sure whether the forum wanted the whole thing on the forum.
    Post by: Tom Kindlon, Apr 27, 2023 in forum: ME/CFS research
  19. Tom Kindlon
    Thread

    Exploring the Genetic Contribution to Oxidative Stress in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2023, Hampilos et al

    Abstract (only): Exploring the Genetic Contribution to Oxidative Stress in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Nicholas Henry...
    Thread by: Tom Kindlon, Apr 27, 2023, 15 replies, in forum: ME/CFS research
  20. Tom Kindlon
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    I saw this: I think it's in an article "is there a fundamental problem with the definition of long Covid?"
    Post by: Tom Kindlon, Apr 27, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
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