It can be useful to get people who are not doctors to write reports about how an illness or disability has affected somebody when applying for...
I put it aside recently to read. I didn’t keep a record of the source but think now it is was from your mailing list for caregivers. :thumbup:
https://www.uptodate.com/contents/patient-perspective-myalgic-encephalomyelitis-chronic-fatigue-syndrome Patient perspective: Myalgic...
Information leaflet on ME/CFS and children/young people either for patients or for doctors? I'm involved in organising a mail-out to GPs. Most of...
I just checked: there is also an extension for Firefox. They are also working on an update for Safari.
I have just gotten around to reading this and found it very good. Just to nit-pick a bit: The PACE Trial was approved for funding in May 2003....
You can get a PubPeer extension for Chrome which highlights when there are responses on PubPeer. See the images attached. I have no idea how many...
PubMed Commons was a great resource for posting such comments. Also comments were prominent as they were on the PubMed website. I spent quite a...
I just went to look for the PubPeer link where people can post post publication comments and found this one by Peter White (a different Peter...
I just found this one by Peter White (a different Peter White to the one who was lead author of the anomalies paper). It starts: The following...
With 12,900 odd followers I’ve quite a big following and have shared: I saw last week the @mecfsnews account also linked to the thread. The more,...
@rvallee has now posted his e-letter here...
This opportunity is still available. From @MassMECFS e-newsletter Join the All of Us Research Program at NIH The NIH is enrolling 1 million...
“In this cool dark room, shielded from the world I think of those who have endured the ultimate tests in life, war, famine, homelessness, natural...
“I'm Katie, I’m 18 and living with Very Severe ME. I live my life in one room, always in my bed. Not leaving it for months at a time. Everything,...
“I have had #severeME for 26 years” “The frustrating thing about sometimes having 30% capacity is that I can do so much more from well-rested but...
New, non-discussion thread I have just set up: (No discussion) E-letters submitted to JNNP replying to White et al. "Anomalies in the review...
Francis Ak'enamé
[This was initially posted on the JNNP then deleted with the following comment posted...
Published: https://jnnp.bmj.com/content/early/2023/07/09/jnnp-2022-330463.responses#shortcomings-in-the-commentary-by-white-et-al Shortcomings in...
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