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  1. ahimsa
    Post

    Incidence, co-occurrence & evolution of long-COVID features: A 6-month retrospective cohort study of 273,618 survivors of COVID-19, 2021, Taquet et al

    Sept. 29 article from NPR about this study:...
    Post by: ahimsa, Oct 2, 2021 in forum: Long Covid research
  2. ahimsa
    Post

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Recordings of both days of this NIH videocast (Beyond the Symptom: The Biology of Fatigue) are now available. Day 1 -...
    Post by: ahimsa, Oct 2, 2021 in forum: ME/CFS research news
  3. ahimsa
    Post

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Bumping this thread to remind anyone who wants to register for the 2-day NIH webinar scheduled for Sept. 27-28. Registration is required but I...
    Post by: ahimsa, Sep 25, 2021 in forum: ME/CFS research news
  4. ahimsa
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Indeed! In fact, I saw another comment just like yours on twitter this morning: "unexpected to WHOMST because disabled people told you this in...
    Post by: ahimsa, Sep 25, 2021 in forum: Long Covid news
  5. ahimsa
    Post

    Current forms and checklists for disability

    I wish I could help, but all I can think of is this website. It's mostly about how to get social security in USA, but maybe something on this...
    Post by: ahimsa, Sep 19, 2021 in forum: Work, Finances and Disability Insurance
  6. ahimsa
    Post

    USA: News from Solve ME

    A recording of this webinar is now available on the Human Health Project's YouTube channel: [MEDIA] https://www.youtube.com/watch?v=3O_1wAfSPC8...
    Post by: ahimsa, Sep 11, 2021 in forum: News from organisations
  7. ahimsa
    Post

    USA: News from #MEAction

    #MEAction has announced an official membership program. Announcement on twitter (with a short video):...
    Post by: ahimsa, Sep 10, 2021 in forum: News from organisations
  8. ahimsa
    Post

    The biology of coronavirus COVID-19 - including research and treatments

    I just saw a twitter thread about a study comparing the transmission of coronavirus by vaccinated vs. un-vaccinated people. First tweet - "A...
    Post by: ahimsa, Sep 5, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  9. ahimsa
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A recording of this webinar - The Long Haul: What Every Person Should Know About Long COVID - is now available on YouTube: [MEDIA]...
    Post by: ahimsa, Sep 3, 2021 in forum: Long Covid news
  10. ahimsa
    Post

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management, 2021, Bateman et al

    I don't know, but here's a general comment from the Medscape article :
    Post by: ahimsa, Aug 26, 2021 in forum: Resources
  11. ahimsa
    Thread

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management, 2021, Bateman et al

    Published today in the Mayo Clinic Proceedings: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management...
    Thread by: ahimsa, Aug 26, 2021, 28 replies, in forum: Resources
  12. ahimsa
    Post

    USA: News from #MEAction

    #MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS...
    Post by: ahimsa, Aug 23, 2021 in forum: News from organisations
  13. ahimsa
    Post

    Jennie Jacques on living with ME: ‘I am a shadow of my former self physically’ , The Times (Sean O'Neill)

    OMF has posted a copy of the interview on their website: https://www.omf.ngo/jennie-jacques-in-the-news/
    Post by: ahimsa, Aug 21, 2021 in forum: General ME/CFS news
  14. ahimsa
    Post

    USA: News from the Workwell Foundation.

    I have not watched the video myself so I don't know what was discussed during this webinar. But here's an excerpt from an earlier announcement:...
    Post by: ahimsa, Aug 14, 2021 in forum: News from organisations
  15. ahimsa
    Post

    Chronic fatigue syndrome: an emerging sequela in COVID-19 survivors?, 2021, Mantovani et al

    In case it's of use here's a twitter thread from ME Association about this research paper: Quote from Dr. Shepherd: "Some of the content and...
    Post by: ahimsa, Aug 7, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. ahimsa
    Post

    Covid-19 vaccination experiences

    I have no personal knowledge about immunosuppression, but I can copy what Brian wrote in the second tweet on that thread: I should note that I...
    Post by: ahimsa, Aug 7, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  17. ahimsa
    Post

    CDC Treatment Evidence Review - consultation period

    I realize that there's information in this thread saying that this CDC evidence review will not be used to develop a treatment guideline. Good...
    Post by: ahimsa, Aug 7, 2021 in forum: 2021 USA CDC ME/CFS Diagnosis and Treatment Review
  18. ahimsa
    Post

    Open Research study on activity patterns and autonomic dysfunction, Stony Brook Medicine

    The link to the Facebook post was not working when I looked. I did a search and found this on clinicaltrials.gov - I think it's the same study?...
    Post by: ahimsa, Aug 5, 2021 in forum: Recruitment into current ME/CFS research studies
  19. ahimsa
    Post

    Blog: How Long COVID Is Forcing a Reckoning with the Neglect of Post-Infectious Chronic Illnesses

    Agreed! I was happy to see the blog post use strong terms like "institutional neglect." And this part was good - "skeptical providers who still...
    Post by: ahimsa, Jul 31, 2021 in forum: Long Covid news
  20. ahimsa
    Post

    Open US NIH-funded mega project, All of Us, to characterize and track the health of one million people in the US

    Some more links for the NIH All of Us Research Program - Twitter account: https://twitter.com/AllofUsResearch/ Recent news coverage:...
    Post by: ahimsa, Jul 24, 2021 in forum: Recruitment into current ME/CFS research studies
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