Assuming you can find a recliner chair that you like (no small feat!) then using a lap desk in the recliner might work for you. It's what I do. I...
Press Telebriefing: Long COVID & ME When: Thursday, March 25, 12 p.m. PT / 3 p.m. ET / 7 p.m. GMT Contact: Adriane Tillman, #MEAction,...
Actually, advice to avoid things that make the patient worse (included in the famous phrase "first, do no harm") is underrated. Doctors get...
Article by Lindsey Tanner - Survivors Struggle as Scientists Race to Solve COVID Mystery https://www.medscape.com/viewarticle/947450 (you may...
It's "interesting" (not!) that they did not compare ME/cfs to more illnesses that are poorly understood and difficult to treat. Why did they not...
Thanks for posting! I was going to post a similar comment. For example, here's a review from 2018 of products sold on the goop website:
I'm so sorry your wife is having this problem! It sounds terrible. I want to emphasize that our forum does not allow sharing any medical advice!...
Adding a link about the relatively new "modified valsalva maneuver" (vs. the old valsalva maneuver) for SVT:...
I meant to reply to this. One reason I bought the Kardia device is because it was cheaper ($99) than an Apple Watch. And it is easy to use. It...
Long Covid Alliance website: https://longcovidalliance.org/ Edit: Just noticed that this link is in the tweet posted above, but here it is for...
Kardia has come out with newer models (eg, six lead ECG) since I first posted. So sorry to hear that! I feel lucky that when I described this...
Adding a post to this thread for my own info. I had an SVT episode on Sunday that lasted longer than an hour - maybe 10 or 15 minutes longer?...
Thanks for starting this thread, @Blueskytoo ! A study that collected data on ME patients using these trackers would be interesting.
Thanks for posting, @Andy ! This part, describing Long Covid symptoms, will sound familiar to many ME/CFS patients: Here's a link to what NINDS...
For what it's worth, I just looked more closely at the Feb. 2nd letter sent to Congress (the one that's signed by 11 different ME/CFS groups in...
Here's the #MEAction article about this letter to Congress: https://www.meaction.net/2021/02/04/were-asking-congress-to-not-forget-me/
I've seen "post-acute COVID" (or "post-acute COVID-19") in several other places (and I think I heard it in some video?) but I can't remember...
Yep, that's me. According to my cardiologist, I have both POTS and NCS. I mention this only because I have seen some folks say that you can only...
Slides from the video presentation can be found here:...
I found the following announcement at the bottom of this page -...
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