I thought I'd add a link to Tom's announcement on twitter which provides more context for the interview....
Llewellyn King interviews Tom Kindlon, one of the curators of CO-CURE. Kindlon, who is Irish and lives in Dublin, played an important role in...
For those not in the USA, it's looking like there may have been a "superspreader" event at the White House Rose Garden - announcement of candidate...
On Thursday, Sept. 24, I started making daily calls to my congressional representative to ask her to support HR 7057. Her office is closed, but...
Thanks @Sly Saint ! I had missed this tweet for the teaser trailer. I posted on another thread (in the advocacy sub-forum - Mod note - now...
(bolding mine) Thanks @Colin for transcribing those encouraging lines from the audio (TV?) program.
It looks like the ME Action website has been changed - that link used to work but it does not any more. Here's the new link -...
Someone posted a link on twitter about a planned documentary called Relevium. https://glematiroad.com/relevium-documentary I don't know...
I didn't answer the poll because it's just too hard for me to disentangle all the different types of exertion. I think I'd have to purposely...
I have orthostatic intolerance all the time but it is worse during PEM. It's also worse right after any exertion. If I've been resting with my...
Stories like yours are why I did not do a full sleep test at a lab. I've heard so many stories from ME/cfs patients saying that it was a waste of...
I'm just a patient, sick since 1990, who is sharing some thoughts. I hope this makes some kind of sense. I think that first statement is wrong....
Summary version of my previous post: I never feel sleepy during the day. I have no trouble falling asleep at night. I wake up A LOT during the...
I have never felt "sleepy" tired (somnolescence? aka, somnolence?), not even at the beginning of my illness. For the first 4-5(?) years of my...
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