It looks like they have changed the headline on this opinion piece. Same author, same date, but the new headline is, If You’re Suffering After...
Ten minutes seems like a rather short time frame for a tilt test. I thought that at least 30 minutes was more usual? And I remember in the 1990s...
Moved post Washington Post article about Long Covid and the brain: How long covid reshapes the brain — and how we might treat it Gift link (no...
New op-ed in The Philadelphia Inquirer by Jennie Spotila: Let’s approach COVID like the weather. Depending on conditions, we grab an umbrella (or...
I'm not sure how exactly our forum members might use this type of guideline, but I came across this recently and found it interesting. Link to...
MEAction sent an email with new information for the #MillionsMissing September 2022 Protest. I've copied the full text into the quote section...
#MEAction will hold a Virtual Town Hall on August 27 from 12:00 – 1:00 pm PDT (3:00 - 4:00 pm EDT). This purpose of this meeting is discuss the...
A new video on Post Exertional Malaise (40 minutes) has been posted on the Bateman Horne Center YouTube channel: [MEDIA] From the video...
I'm replying to my own comment to add that Solve M.E. obviously has a longer term strategy with this PSA series. They did mention this in their...
I'm happy they made this PSA, but I do wish there was at least one mention of ME/CFS in the video (eg, "many Long Covid patients meet the...
Thanks for transcribing that quote! I was just coming here to do that. :) Screen shot from about 9:20 in the video: [ATTACH]
The reason I was surprised by the "and" in the name is because this is a document from a US government organization. I've never seen this phrasing...
Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 30 session at 1:30 PM on Public...
Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 30 session at 11:00 AM on Treatment....
Thanks for posting those extracts, @Wyva! On a slight tangent, I noticed this phrase several times: I don't remember seeing ME/CFS written out...
Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 30 session at 9:45 AM, Immunology/...
During the conference volunteers live-tweeted during several of the conference sessions using the forum's twitter account, s4me_info. This post...
I forgot to post about this when I first heard about it, but better late than never! MEAction has a new podcast called Chronically Complex....
Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session at 1:40 PM and covers...
Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session Immunology of long COVID...
Separate names with a comma.
