My physically-induced PEM had a consistent 24 hr delay. That fits with the rise in IFN-g that occurs after exertion. The IFN-g would trigger...
When I asked for some to try, my doctor was fine with prescribing it, because it's at such a low dosage that the chance of bad side effects was...
The question is: why is this not being used as a diagnostic tool for ME today? Lack of funding for proper development? I believe that glial...
L-carnitine solved a problem I was having with fatty acids a few years ago. Fatty foods--and I think it was specifically the palmitic acid--made...
That's good to know. I tried to find out what was supposed to be 'normal' and didn't find a definitive answer. When I'm feeling normal levels of...
It's hard to say whether my ME has gotten worse over time. There have been plenty of changes--new symptoms or sensitivities appearing, and...
I like the concept of linked subsystems failing and affecting other subsystems. It could explain the gradual changes in my ME symptoms over the...
I've gotten into the habit of including the (Cuminum cyminum) whenever I mention cumin, because there is confusion. The black cumin is frequently...
I think my tinnitus started gradually sometime after my ME did (that was 2001). It might have been age rather than ME. I haven't noticed a...
Cumin works wonderfully for me. A level tsp of ground cumin blocks my physically-induced PEM completely for 3 days. I'm pretty sure I posted it...
>'The initial enzyme, indoleamine 2,3-dioxygenase (IDO1) is induced by IFNγ, while tryptophan-2,3-dioxygenase (TDO) is induced by...
My PEM seems totally neurological: primarily lethargy and malaise. I don't suffer from physical problems. I'm sure my muscles could manage a...
For me, PEM is a general worsening of my ME symptoms. My physically-induced PEM has a consistent delay of 24 hrs and lasts for hours (hard to...
LDN (low-dosage naltrexone) worked very well for my neuropathic muscle aches (which went away eventually). Acupuncture also worked for that, but...
My first sign of ME was the feeling that I was coming down with a flu: achey, the feeling that if I bumped into anything I'd feel pain all over....
Late to the discussion, but I think there's confusion between PEM and crashes or other worsening of symptoms. We don't have a proper, verifiable...
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