I definitely agree with that. I think many of PWME's symptoms are perceptions of feelings without the physical/chemical abnormalities that...
One of these days there will be a study showing some markers that supposedly differentiate people who spend a lot of time complaining about...
Yes, we ask ourselves "After all those doctors saying "Sorry, can't help you.", and looking at the pile of pill/supplement bottles that didn't...
Sounds like useful research for ME, as well as other diseases.
I think none of the symptoms should be cumpulsory, since there will always be some individuals that have a quirk that avoids or overcomes some...
I doubt that they considered direct chemical responses. Niacin made me strongly suicidal. I believe the mechanism involved quinolinic acid,...
Voice input? I have no idea what's available these days, but I'm guessing it's practical. You could lay there and compose your responses, and...
Yes, that would require a lot of effort for some people. To do it properly I'd have to go back through all my records. I kept meaning to...
They certainly sound like a candidate for ME's mechanism. They meed my criteria for something that responds quickly enough to account for the...
Yes, and it's probably not even conscious error. People's memories get adjusted by what they want to believe. Their guesses about how much they...
I strongly disagree. My physically-induced PEM seemed to be due to t-cell activation from muscle damage (consistent 24 hr delay). My PEM did not...
The records really need to be done immediately. Human memory is too fallible and subject to self-falsification or simple confusion. Maybe I...
That's why we're still waiting for clinical markers: none of our symptoms are clearly defined. We know what they feel like, but communicating...
It's easier than doing good research. Since the garbage-producers are unlikely to produce useful research even if they tried working hard at it,...
Me too! I must have ME! Oh right, I do. I just forgot. :rolleyes: PEM made me want to lie down, but doing so didn't affect my PEM.
If 23/30 mild cases didn't show the virus, then maybe it's not part of ME? My guess is that any immune system activation, from viral infections,...
Yes, since we don't know the field of view necessary to find ME's abnormalities, we might need studies at different scales. If a brain-wide scan...
I like that they're using more than healthy controls. Since I believe ME is neurological (or neuroimmunological), this is the kind of ME research...
Comparisons with healthy controls are likely to show the differences between 'sick and inactive' people and 'healthy active' people, rather than...
I was thinking more about this one. Are there any ME symptoms that absolutely 100% cannot be due to neurological dysfunction? Even muscle...
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