Were the tests done on patients who were severe? If not, the results might not apply to severe patients. I'm really skeptical about the...
CSF may not contain the abnormal metabolites that might be occurring in ME. It's possible for them to be localized to specific parts of the brain.
Hmmm, pretty complex systems.
It's a shame that they didn't include one or more other groups, to test the comparative effectiveness of watching TV or playing computer games or...
@DMissa , perhaps you can comment on my hypothesis about dietary niacin causing suicidal moods. I started getting suicidal moods soon after...
Yup, not very useful, especially since it's anecdotal evidence. My guess is that if they'd asked people to try magic crystals or random...
The comments mentioned another thread about someone who benefited from it, but also a comment from someone who almost died from taking it. I...
I expect there would be plenty of volunteers from the ME community who would be willing to give this a try. If it doesn't help significantly, at...
Yes, we still have no reliable test for actual fatigue, or even a clear definition of what fatigue is, so asking a patient "Do you feel fatigued?"...
One solution is to require 'placebo effect treatments' to include a disclaimer such as: "Works just as well as snorting gummy bears! <or some...
Why should the same old sh*t work now? Answer: because it's got a new label!!! :rolleyes:
"We who make money selling physiotherapy services have a hammer. ME looks like a nice profitable nail."
My ME has responded to several species of longer-chained fatty acids. Palmitic made me feel worse unless I also consumed enough carnitine. CLAs...
An easier solution to this problem: just redefine psychology as 'not a valid science'. If they're not following the rules and procedures of...
My cognitively-induced PEM would occur 30 minutes to an hour or two after the trigger (chatting, driving in poor conditions), so I don't think...
It could be that some of these genes bias other functions in the body that makes it more likely for us to get stuck in this abnormal state. Thus...
21 subjects, with vague sets of factors (fatigue and diet), and they're trying to claim meaningful results? I expect if they redid this with...
I agree with your feelings about "thinking happy thoughts" is supposed to be such a great cure-all ... without reliable proof. Likewise about...
I think ME screws up neurological signalling, more or less at random, so having your satiation signals messed up seems plausible to me.
I see this as the sort of 'bit of knowledge' that might trigger a flash of insight in some other researcher. "Oh, that might explain why ...".
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